My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was diagnosed with Juvenile Absence Epilepsy when I was 12. I had, for a long time before this, been told that I was a day-dreamer and never paid attention. Turned out it wasn't daydreams but...

Dartford

Beth, 27, had her first seizure aged 13. She fell unconscious for 15 minutes and lost all movement down her left side.

"I couldn't talk, I couldn't walk, I couldn't move the left side of my...

I would like to share my recent discovery. Ever since my husband started working from home due to the Coronavirus lockdown my seizures have reduced significantly. Having him with me throughout the...

Brentwood

At the age of 17 just as I about to take “A-levels” I experienced a situation that was described at a nocturnal seizure. That was almost 60 years ago and little was known about what was happening...

So here's my story of my epilepsy.

Through childhood I had a few partial seizures that my parents were told I had epileptic tendencies but they didn't know if they would develop or not....

Newport

I was diagnosed with epilepsy in my first year of uni.

In 2016, I began having seizures as a result of encephalitis. I kept having weird turns and passing out, which I just put down to...

hello my name is Sophie
when I was a baby i had a febrile seizures i stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived i stopped seizing ....

Saugerties

“I had my first tonic clonic seizure in March 2018, when I was asleep in bed. I realised how serious things were when there were two paramedics standing over me in my bedroom putting an oxygen...

Northern Ireland

I developed epilepsy when I was 17. One night I randomly had a grand mal seizure in the middle of the night and my family called for paramedics. I was taken to hospital and had another seizure...

Newcastle upon Tyne

Love me, cajole me, comfort and console me, anything is welcome to help to reassure me; I know it is meant in good faith because there’s nothing else to cure me. But when you say ‘it’s’ not that...

Ipswich

Planning

When I was diagnosed in 2008 my symptoms were quite severe. I wasn't able to work and day-to-day tasks were a struggle. At this point I thought I might never be...

I was first diagnosed when I was 14 years old. It was a typical family Christmas and we were celebrating. All I can remember is the dog barking and sniffing around me, and then I was having a...

My greatest achievement was being awarded Chartered Legal Executive status on 23 April this year. Chartered Legal Executives can now become Partners and Judges and therefore stand side by side...

Chartered legal executive York

I'm 3 years diagnosed and I'm using this as a sort of therapy .....a form of epilepsy may cripple you but I'll never stop promoting our strengths. ...... I live very happily but I deal with my...

I had my first witnessed seizure in 2002 however it was diagnosed as dissociative disorder because the neurologist didn't think someone of my age( 40 in 2002) could develop epilepsy. The next...

Dublin

I was 10 (now 23) when I was diagnosed with absence epilepsy. I was a day dreamy child which made it hard to spot until I was having so many it was impossible to have a conversation with me. I...

Lincoln

Today is the day I can no longer say ‘…but it’s okay, I’m seizure free’ when explaining my condition.

I have been diagnosed with epilepsy for over 7 years. I am the first one to make light...

Bournemouth

I’m currently in my first year of an integrative counselling and psychotherapy diploma. Unfortunately this has been online due to the pandemic. I’m no stranger to working online as I did my MSc...

I was diagnosed with Temporal Lobe Epilepsy 10thFebruary 2016. I am finally starting to come to terms with the condition and having to take medication everyday. I have not yet gained control over...

Tough Mudder, Yorkshire 2016

Ariish Wol @arrriish / https://www.instagram.com/arrriish/ has been modelling for just over 2 years. She was born in South Sudan and grew up in...

I was diagnosed with epilepsy in my first year of uni.

In 2016, I began having seizures as a result of encephalitis. I kept having weird turns and passing out, which I just put down to...

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