My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I'm a 37 year old teacher and I have had diagnosed epilepsy for about 20 years.

I was originally told I had JME (juvenile myclonic epilepsy) and it had been well controlled by Keppra for...

Hornchurch, Essex

I was first diagnosed with JME aged 19yrs, although had had it for a while beforehand, mostly occurring in the morning - eating my cereal could be messy, and my brother and sister used to find it...

My name is Laura, I live in Belfast Northern Ireland. Being diagnosed with epilepsy at a young age came with its own challenges, however the numerous other problems I faced coupled with this...

Belfast

My Epilepsy journey started when my close family and friends and also work colleagues had noticed me having absence/focal seizures (thought it was just anxiety) maybe twice a year since 2016..I...

Bexhill-On-Sea

Geoffrey Streatfeild is lacing up his running shoes to complete this year’s Virgin Money London Marathon. The actor, along with his three brothers, Luke, Roland and Richard, will take on the...

London

A professor from Penrith is lacing up his running shoes to complete this year’s Virgin Money London Marathon. Professor Gus Baker will take on the gruelling 26.2 mile run on Sunday 26 April to...

Penrith

My first seizure began somewhere around 2013.

It was a hot summer day, around 12pm, at a seafood restaurant, that my friends saw me lift the table throwing all our food to the floor and...

Texas

This poem was an entry in Epilepsy Today's first-...

Planning

When I was diagnosed in 2008 my symptoms were quite severe. I wasn't able to work and day-to-day tasks were a struggle. At this point I thought I might never be...

I was diagnosed with epilepsy when I was two. My memories of being epilepsy-free are basically non-existent, so I when people ask me "What's it like to have epilepsy?" and "What if you didn't have...

Hyderabad

Maggie (26) has spent the last few months working to better educate people about epilepsy. In the process, she has regained the confidence that was almost taken from her, when two strangers...

Soooo ... 11 years ago, I woke up late for work and I was tired and was ironing my uniform when suddenly my tummy felt weird and all of a sudden I had De-Ja-Vu.

These continued every 3...

Watford

My epilepsy is something I’ve always tried to avoid talking about but recently I am embracing being more open about it. I had my first seizure at 14 when repairing my bike, it was a harrowing...

This poem won in the 13 years old and younger category of Epilepsy Today...

This poem was a shortlisted entry in Epilepsy Today...

My life story
I was an extremely active child, walking and talking at a very young age, never sleeping a full night until I started school. When I was 7 I started to have tonsillitis which...

Bedford

In 2016 I was arguably at the top of my game in terms my chosen career. I had served 26 years in the police service predominantly working within the world of tackling serious and organised crime....

Kidderminster

This poem was an entry in Epilepsy Today's first-...

This poem was a shortlisted entry in the 14 and over category of Epilepsy Today...

I will be running in the London marathon on behalf of Epilepsy Action for my dad who has epilepsy!

He has suffered since he was a little boy and from a young age I had to deal with knowing...

Epilepsy Action Hero - London Marathon 2014

My name is Jodie-Marie, I began having seizures at the age of 12. My first seizure took place at school in an English classroom, of course this raised issues. The next few months were constant...

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