My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Hello,

My name is Lauren and I am 25 years old. I was suddenly diagnosed when I was 24 out of the blue. I hope my video uploaded onto youtube will help to inspire people suffering with the...

I have always had epilepsy so have never known anything else. It was caused by a stroke at birth so It's just part of my life. Having seizures growing up was tough, whenever an aura started I knew...

Pontypool

Hi All. I had my first seizure aged 45 it came totally out of the blue and totally changed my life.

I had a Tonic seizure which lasted about five minutes and put me in hospital for two...

West Mids

Although now cured by neurosurgery, Tristan suffered from uncontrollable seizures for much of his life.

Tristan feels that his greatest achievement was his perseverance until he found a job...

Coventry

i was diagnosed with absent seizures when i was 4 my teacher as the first one do noticed them, i am now 14 and are still having them and they are getting a lot better i used have them for 15-20...

andover

This poem was an entry in Epilepsy Today's first-...

Two weeks...
Two weeks... that is how long I've been diagnosed with epilepsy.
It has been a strange couple of weeks. But nothing has changed; I still needed to hand in my dissertation...

Bristol

I had my first seizure on 29th October 2013 when I was 18 years old. When they said they found irregularities in my brain waves from my EEG and that I had Epilepsy my heart sank and I felt very...

York

Living new life with Epilepsy.

When I last saw my Epilepsy specialist many months ago at a hospital, she suggested I change one of the medications I've been taking for many years to a more...

Tunbridge Wells, Kent

I would like to share my story to show people not to ever give up hope!

At the age of 12 I noticed these strange feelings. After being referred to the hospital, scans revealed I had scar...

Liverpool

Last year my brother ran the London Marathon in order to raise awareness for epilepsy after his son had been suffering and was diagnosed in May 2011. So this year I figured it was my turn!

...

Epilepsy Action Hero - London Marathon 2014

I was 10 (now 23) when I was diagnosed with absence epilepsy. I was a day dreamy child which made it hard to spot until I was having so many it was impossible to have a conversation with me. I...

Lincoln

I had a seizure in Haddington, East Lothian.
Before an ambulance arrived, the police arrived and because I was not doing what they asked and pushing them away whilst in the seizure ,I was...

Edinburgh

For Volunteers' Week 2018 we are celebrating the fantastic people that help us make a difference every day. Katie is from Leeds. She has been volunteering for Epilepsy Action for 2 years in the...

Leeds

During the last year, Laura (22) has graduated from university and started her career as a soprano and music tutor. In this short video, Laura shares her amazing success as a classical singer,...

Ladies Circle is a networking organisation for women aged between 18 and 45, founded in 1936. The friendship group runs around 120 different clubs nationwide, and is all about having fun,...

From the age 14, I'd get ready for school in the morning and have a cup of tea. My arm would jerk slightly. I thought it was normal. I just carried on with my day.

That happened for years...

Chesterfield

This is my daughter she has severe epilepsy and also suffers from panic attacks. She couldn't do any children's activity clubs because of the panic attacks and epilepsy. Untill we found majorettes...

Wirral

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