My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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At 28 I had a successful career in Finance and could go or do anything I wanted. Then things changed, I woke to see an ambulance man kneeling by my pillow telling me I had to go to hospital. I had...

Oxford

Back in 2010 I was unfortunately diagnosed with epilepsy totally out of the blue. This came after suffering a seizure at night and prior to that suffering from absences/petit mal seizures over...

Southampton

EPILEPSY...a new beginning!!!

Monday 23rd February 2013 around 10.30am.....
‘Could you send an email too....’ a colleague asked. I looked at my computer screen, then keyboard and...

Belfast

Passing my cache level 2 in pre school practice and having my two lovely boys

Northampton

I'm 22. I was diagnosed with epilepsy at the age of 10. I fell in school and had no lump on the back of my head. A week later I was taken ill into hospital and that's when I had a seizure. During...

Pontypridd

Compared with some on this page, I've had it pretty easy with epilepsy. In fact, I've only had four seizures. Since I was diagnosed at 22, there's been very few times that my epilepsy hasn't been...

Leeds

I was diagnosed with temporal lobe epilepsy 11 years ago after a head injury and I am now petitioning for strobe light warnings to be made a legal requirement - please click the link and sign...

London

My name is Rocio Calderon, I'm a mother of two beautiful girls & a fiancée of a proud army veteran. I was diagnosed with a rare brain condition that affects 1 in 100,000 children. Before birth...

Glendale AZ

Volunteering is not always about spending a day helping out in an office or at a charity fundraising event. It can also be about giving your time to speak out about an issue and make positive...

Lincoln

Dr Daniel Hindley works at Bolton Foundation Trust. A paediatric consultant and clinical lead in community paediatrics, he has interests in childhood epilepsy and neurodisability...

When I was 9 my mother passed away from epilepsy, to this day we never knew what it was, the hospital and funeral people just put it down as a natural cause.

My mum was young and loved her...

Southampton

I had my first seizure when I was 4 years old. Since then it has come and gone, going up to 4 years without one. During my teens and 20's most seizures were caused by being careless. All being...

Norfolk

I was diagnosed with epilepsy aged 23. I lost my license for 5 years as unfortunately I kept having seizures around 10-11 months after the previous one. I live in Cambridgeshire in a small village...

Radio personality

I had just graduated from university in 2005, I was hoping to move on to a teacher qualification when my had my first tonic clonic seizure. It didn't stop me and went back to university in the...

Croydon

I think it's important that people can see what happens and understand epilepsy more.

I think alot of people's ignorance isn't down to them being bad people, but a lack of knowledge and...

Winchester

My first seizure starts when i was 13. I was playing on a school field when suddenly i begun to feel dizzy,jerking and my lips moving then feel off the ground. It was very painful. A grand mal...

manila philippines

My story began in October 2005 when I fell from a first floor balcony onto granite paving below whilst trying to move a futon. My head took the impact of the fall, I fractured my jaw in three...

Truro

I am a 37 yr female who at the age of 14 whilst carrying out a weekend job in a clothing store started to get jerks in my arms whilst serving customers.

This was particularly bad when I was...

Exeter

I was diagnosed with epilepsy at age 11, the cause of which was never discovered, I spent 11 years of my life with almost daily seizures, "partial absences" and from age 16 chronic migraine.

...
Inverness

Angel was diagnosed with epilepsy when she was 14, nearly four years ago. She has had very mixed experiences in public.

“My seizures are usually once a month and can be triggered by stress...

Hi my name is Theodora and I have epilepsy.

I have the seizures if I get too hot or being stressed out. If I don't tell people what I am feeling inside, I will just have a seizure, if I run...

Dorking

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