My Story
Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.
These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.
At 28 I had a successful career in Finance and could go or do anything I wanted. Then things changed, I woke to see an ambulance man kneeling by my pillow telling me I had to go to hospital. I had...  Oxford | Back in 2010 I was unfortunately diagnosed with epilepsy totally out of the blue. This came after suffering a seizure at night and prior to that suffering from absences/petit mal seizures over... Southampton | EPILEPSY...a new beginning!!! Monday 23rd February 2013 around 10.30am.....  Belfast |
Passing my cache level 2 in pre school practice and having my two lovely boys Northampton | I'm 22. I was diagnosed with epilepsy at the age of 10. I fell in school and had no lump on the back of my head. A week later I was taken ill into hospital and that's when I had a seizure. During...  Pontypridd | Compared with some on this page, I've had it pretty easy with epilepsy. In fact, I've only had four seizures. Since I was diagnosed at 22, there's been very few times that my epilepsy hasn't been... Leeds |
I was diagnosed with temporal lobe epilepsy 11 years ago after a head injury and I am now petitioning for strobe light warnings to be made a legal requirement - please click the link and sign...  London | My name is Rocio Calderon, I'm a mother of two beautiful girls & a fiancée of a proud army veteran. I was diagnosed with a rare brain condition that affects 1 in 100,000 children. Before birth...  Glendale AZ | Volunteering is not always about spending a day helping out in an office or at a charity fundraising event. It can also be about giving your time to speak out about an issue and make positive...  Lincoln |
Dr Daniel Hindley works at Bolton Foundation Trust. A paediatric consultant and clinical lead in community paediatrics, he has interests in childhood epilepsy and neurodisability... | When I was 9 my mother passed away from epilepsy, to this day we never knew what it was, the hospital and funeral people just put it down as a natural cause. My mum was young and loved her... Southampton | I had my first seizure when I was 4 years old. Since then it has come and gone, going up to 4 years without one. During my teens and 20's most seizures were caused by being careless. All being... Norfolk |
I was diagnosed with epilepsy aged 23. I lost my license for 5 years as unfortunately I kept having seizures around 10-11 months after the previous one. I live in Cambridgeshire in a small village... Radio personality | I had just graduated from university in 2005, I was hoping to move on to a teacher qualification when my had my first tonic clonic seizure. It didn't stop me and went back to university in the...  Croydon | I think it's important that people can see what happens and understand epilepsy more. I think alot of people's ignorance isn't down to them being bad people, but a lack of knowledge and... Winchester |
My first seizure starts when i was 13. I was playing on a school field when suddenly i begun to feel dizzy,jerking and my lips moving then feel off the ground. It was very painful. A grand mal...  manila philippines | My story began in October 2005 when I fell from a first floor balcony onto granite paving below whilst trying to move a futon. My head took the impact of the fall, I fractured my jaw in three... Truro | I am a 37 yr female who at the age of 14 whilst carrying out a weekend job in a clothing store started to get jerks in my arms whilst serving customers. This was particularly bad when I was... Exeter |
I was diagnosed with epilepsy at age 11, the cause of which was never discovered, I spent 11 years of my life with almost daily seizures, "partial absences" and from age 16 chronic migraine. ... Inverness | Angel was diagnosed with epilepsy when she was 14, nearly four years ago. She has had very mixed experiences in public. “My seizures are usually once a month and can be triggered by stress...  | Hi my name is Theodora and I have epilepsy. I have the seizures if I get too hot or being stressed out. If I don't tell people what I am feeling inside, I will just have a seizure, if I run... Dorking |