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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was diagnosed with temporal lobe epilepsy when I was seven years old. My parents never made an issue out of it and I was always allowed to do things that I was safe to do. Until the age of 21, I...

My name is Andrew, I have a daughter called Maddison who was diagnosed with epilepsy at the age of 2 and she still has seizures at the age of 6.

She is currently taking four different types...

Middlesbrough

This is Robyn, she is 4 1/2 yrs old. She is still under investigation for epilepsy after almost 2yrs of having the episodes.

It is a bit difficult with her as the specialists strongly...

Llandovery, Wales

I new zero about epilepsy as a child! As i got to about 19 (1969) my life started to go wrong. I had headaches of a different type, they were so painful i could not go to work or get out of bed....

London

Paul, 52, from Greenisland, Northern Ireland, was diagnosed with epilepsy ten years ago. His wife found him when he was having his first tonic-clonic seizure and had to call emergency services as...

Greenisland, Northern Ireland

Hi, my name is Lauren. I have a wonderful little boy named Albie who was diagnosed with Dravet Syndrome in September 2018 (Just before his 1st birthday). Albie was having lots of prolonged...

I'm Ojijo .M. Odhiambo from Kenya.Today , i'm going to talk about how epilepsy has affected my education journey.I'm a 4th year student pursuing Mechanical Engineering at The Technical University...

Nairobi - Kenya

Chris and Sam shared their story for National Epilepsy Week 2017

Their story shows how people with epilepsy can be affected by the current benefits assessment processes. This has already...

My greatest achievement is winning the Challenge Cup in 2005, when Hull FC beat Leeds Rhinos at the final in Cardiff. I’m a professional rugby player for Hull FC. I’m 28 and live in Hull. I’m...

Challenge cup winner

Sezuires began with a bang, 8 in 12 hours remember nothing of it ,apart from soiled clothes then waking in A&E, took year to diagnose.

Daily sezuires, gone from Senior Social Worker and...

Pontypridd,wales

...being elected the MP for Blackpool and North Cleveleys. I am in a unique position of being able to highlight a variety of disability issues, and I hope this means that groups of people whose...

Paul is a Member of Parliament

In August 2014, when I was 25, I had a tonic-clonic seizure whilst driving on the M62. Luckily noone else was involved and apart from a few bumps and bruises I was fine. My car, however, was...

Selby

Roseanna has had epilepsy since she was 21. She has focal seizures that are caused by a scar on the temporal lobe of her brain. Her seizures are mostly controlled by medication now, but she says...

Enniskillen

I am a 37 yr female who at the age of 14 whilst carrying out a weekend job in a clothing store started to get jerks in my arms whilst serving customers.

This was particularly bad when I was...

Exeter

Planning

When I realised things were getting serious between me and my now husband, I went for preconception counselling. I had been on Epilim (sodium valproate) pretty...

When I was about 21 I started to have very vivid deja vu; to the point where it repeated in my head for minutes. At the time I was confused but thought, it’s normal everyone gets it. Then it got...

Scotland/New Zealand

One of my achievements as well as recieving my blackbelt which is currently featured on the epilepsy action National Epilepsy Week is starting up the Horncastle Epilepsy Support Group as i will...

Horncaastle

Looking back, despite our research, we were quite naive when planning to have our first child. No one was overly concerned that I was taking sodium valproate. At 20 weeks, I had the normal scan -...

I was diagnosed at 18 and the cause was unknown until I started retracing my steps. I realised I began having seizures after I started having problems in my relationship. My neurologist said that...

Bury St. Edmunds

I was diagnosed in 1986 with what was then called petit mal seizures. I was put on valproate. At 19 I had 3 tonic clonic seizures and had my medication changed to the then new drug Lamotrigine. A...

Verwood

The moment I knew I was pregnant

Surely this can’t be right!! What were the instructions again? Does that blue line really mean…?

I was expecting it to take at least...

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