My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I had my first seizure at the age of 9 months and was diagnosed at 18 months of age.

It affected my life in every aspect from very early on. I was so poorly that I couldn't go to nursery or...

Even though there is an American with Disabilities Act (ADA) protecting people with disabilities including epilepsy, there is still a lot of people in this developing world who still treat a lot...

San Francisco

I was diagnosed with Epilepsy in 2006, at the age of 10 years old. During my last year of primary school, looking forward to my high school years. And from then on all, all that has done has...

Barratt

My son Kai was born with Tuberous Sclerosis Complex and epilepsy due to his tsc. Kai had his first seizure at 4 months old. He had 3 brain operations and went onto a drug trial to help reduce his...

Passing my cache level 2 in pre school practice and having my two lovely boys

Northampton

Planning

When we went for preconception counselling (in 2004), I was still at the stage of having about 40-50 petit mal seizures a month. I was on a low dose of lamotrigine...

Compared with some on this page, I've had it pretty easy with epilepsy. In fact, I've only had four seizures. Since I was diagnosed at 22, there's been very few times that my epilepsy hasn't been...

Leeds

My name is Rocio Calderon, I'm a mother of two beautiful girls & a fiancée of a proud army veteran. I was diagnosed with a rare brain condition that affects 1 in 100,000 children. Before birth...

Glendale AZ

When I was 9 my mother passed away from epilepsy, to this day we never knew what it was, the hospital and funeral people just put it down as a natural cause.

My mum was young and loved her...

Southampton

I had my first seizure when I was 4 years old. Since then it has come and gone, going up to 4 years without one. During my teens and 20's most seizures were caused by being careless. All being...

Norfolk

Jane writes about her son Matt:

Matt is a strapping 24 year old, 6 foot man with a zest for life. Matt is very sporty and has always liked to keep himself fit. He is a natural sportsman and...

I was 13 years of age when I had my first seizure. I remember waiting to get on the bus after a sleepover at my friends house, full of happiness after a girlie night. When all of a sudden I was...

Manchester

Epilepsy is a weird one for me. I’ve had grand-mail seizures since childhood, but I’m very lucky to only have them a few times a year if I manage my lifestyle. I have fits if I don’t sleep, this...

Leeds

I went from being a normal 17 year old with the odd issue but I was doing okay in college and studying hard to being mistaken one day for someone else and due to that mistake I then started to get...

I was diagnosed with epilepsy aged 23. I lost my license for 5 years as unfortunately I kept having seizures around 10-11 months after the previous one. I live in Cambridgeshire in a small village...

Radio personality

I think it's important that people can see what happens and understand epilepsy more.

I think alot of people's ignorance isn't down to them being bad people, but a lack of knowledge and...

Winchester

My story began in October 2005 when I fell from a first floor balcony onto granite paving below whilst trying to move a futon. My head took the impact of the fall, I fractured my jaw in three...

Truro

I was diagnosed with epilepsy at age 11, the cause of which was never discovered, I spent 11 years of my life with almost daily seizures, "partial absences" and from age 16 chronic migraine.

...
Inverness

Hi my name is Theodora and I have epilepsy.

I have the seizures if I get too hot or being stressed out. If I don't tell people what I am feeling inside, I will just have a seizure, if I run...

Dorking

I was diagnosed with epilepsy when I was two. My memories of being epilepsy-free are basically non-existent, so I when people ask me "What's it like to have epilepsy?" and "What if you didn't have...

Hyderabad

been diagonised when was 9 have been diagonosed with photosensative flashing lights stress can triger my fits when i wake feel like sleeping for 3 days i have no energy after been put on alot of...

birmingham

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