My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Planning

When we went for preconception counselling (in 2004), I was still at the stage of having about 40-50 petit mal seizures a month. I was on a low dose of lamotrigine...

I was diagnosed with epilepsy when I was 3 years old. At the age of ten, I was admitted to hospital with my epilepsy. When I was in hospital it was then I decided I wanted to become a nurse. I...

Became a nurse despite the odds

The dedication of the Epilepsy Action Harrogate branch and a team of paediatric nurses has paved the way for a new paediatric epilepsy specialist nurse to be appointed at Harrogate District...

Harrogate

My story began in October 2005 when I fell from a first floor balcony onto granite paving below whilst trying to move a futon. My head took the impact of the fall, I fractured my jaw in three...

Truro

Curveballs

My autobiography is called 'Wanting to be Anyone but Me.' It took me several years to write and I finished it just before my fortieth birthday. I'm now forty one.  And the...

Farnham

Hello my name is Natasha, I am 31 years old.

I randomly began having seizures aged 21, ten years ago, I was put on Keppra and diagnosed with Generalised Epilepsy.

I really need and...

Bradford

This poem was an entry in Epilepsy Today's first-...

Compared with some on this page, I've had it pretty easy with epilepsy. In fact, I've only had four seizures. Since I was diagnosed at 22, there's been very few times that my epilepsy hasn't been...

Leeds

My first seizure starts when i was 13. I was playing on a school field when suddenly i begun to feel dizzy,jerking and my lips moving then feel off the ground. It was very painful. A grand mal...

manila philippines

My name is Rocio Calderon, I'm a mother of two beautiful girls & a fiancée of a proud army veteran. I was diagnosed with a rare brain condition that affects 1 in 100,000 children. Before birth...

Glendale AZ

Jonny’s girlfriend, Sara, was diagnosed with epilepsy in 2014 after having a tonic-clonic seizure at V Festival. Over the last 18 months, she has tried a number of epilepsy medicines but they have...

Angel was diagnosed with epilepsy when she was 14, nearly four years ago. She has had very mixed experiences in public.

“My seizures are usually once a month and can be triggered by stress...

I was in the army for 12 years then costruction industry for 45 years. One night I had a memory loss, I couldn't speak or answer my wife, I had slid off a chair.

My wife phoned the hospital...

Lossiemouth moray Scotland

I was diagnosed with epilepsy aged 23. I lost my license for 5 years as unfortunately I kept having seizures around 10-11 months after the previous one. I live in Cambridgeshire in a small village...

Radio personality

Even though there is an American with Disabilities Act (ADA) protecting people with disabilities including epilepsy, there is still a lot of people in this developing world who still treat a lot...

San Francisco

I think it's important that people can see what happens and understand epilepsy more.

I think alot of people's ignorance isn't down to them being bad people, but a lack of knowledge and...

Winchester

I was diagnosed with Epilepsy in 2006, at the age of 10 years old. During my last year of primary school, looking forward to my high school years. And from then on all, all that has done has...

Barratt

I was diagnosed with epilepsy at age 11, the cause of which was never discovered, I spent 11 years of my life with almost daily seizures, "partial absences" and from age 16 chronic migraine.

...
Inverness

Hey everyone! I’m Abbey and I’ve wanted to share my story for such a long time, but it needed to feel right for me. And right now there is no time like the present!

My journey started...

London

Susan was 16 when she was diagnosed with epilepsy after a seizure at school. She was prescribed valproate, which proved effective in controlling her seizures. But she was never told at any point...

Belfast

My name is Nils and I suffer from complex partial epilepsy.

It doesn't stop me from my love of running. I have just completed the Leeds half marathon and came 10th in my category, 63rd...

Skipton

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