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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Hi all, Had epilepsy from young age. Have partial seizures/ absence about twice a month.am working .i am sporty playing squash /gym 2-3 times a week. Have had a couple of worse seizures when I...

Birmingham

Leanne hopes to raise £2,500 for Epilepsy Action in this year's London Marathon.

Her son, Morgan, six, has severe and difficult to treat epilepsy. Morgan started having...

“One time I had a seizure on the platform at London Bridge. Luckily, a member of the public was able to catch me as I was about to fall in my tonic clinic seizure. They protected my head,...

West London

I've had epilepsy since I was eight years old. I have complex partial seizures and absences.

I've never been allowed to drive and have lost a lot of jobs. My memory affected my education...

Northampton

getting good grades and living a happy life.

I am 15 years old, and I have had epilepsy for 9 years.

Through those 9 years I have learnt that it can be hard to live with when your...

Good grades and happiness

In 1996 I was diagnosed with epilepsy. I didn't know much about epilepsy Butler quickly I tried many tablets to try and control my seizures eventually it was under control and by 1999 I was back...

Maldon Essex

I experienced my first seizure at the age of 15, I was later diagnosed with idiopathic generalised epilepsy with photosensitivity. I was medicated for 18 months then taken off medication. Six...

Yeovil

Epilepsy has made life difficult. I was first diagnosed with Epilepsy when I was 14, I'm 21 now. Being a young girl and hearing that diagnosis is extremely difficult to deal with.

The day...

Walsall

I have suffered from epilepsy since the age of 18 months when I fell and hit my head on a table leg. I was at the toddler age and into everything!

Throughout childhood I was in and and of...

Rochford

At 28 I had a successful career in Finance and could go or do anything I wanted. Then things changed, I woke to see an ambulance man kneeling by my pillow telling me I had to go to hospital. I had...

Oxford

becoming the first ever female professor of astrophysics at University of Warwick at age 39!

Sandra was diagnosed with temporal lobe complex partial seizures in 1980, during her...

First female professor of space & astrophysics at Warwick University

MY EPILEPSY JOURNEY BLOG

This blog is when I got first diagnosed with childhood juvenile absence epilepsy. When I turned 5 years old the start of it was when I was just ignoring my...

Waterlooville

I first had a generalised seizure when I was around 14/15 and I remember it so well.

It was, quite obviously, one of the scariest moments of my life. I fell because I was experiencing Deja...

Manchester

Having Epilepsy for sixty five years I went to writing school after early retirement
learnt like many with disabilities by teachers my main aim in life, that was to
write poetry and...

BRAMPTON CUMBRIA

I was diagnosed with a epilepsy at the age of 7, a normal day I was sitting watching TV eating a baby bell and it happened. Full blown seizure. Never have in ever touched a baby bell since, even...

Surrey

This poem was an entry in Epilepsy Today's first-...

I was diagnosed with absence epilepsy (then known as petit-mal) when I was 11 years old.

My parents thought I was going to be a difficult teenager as I would look like I was bored when they...

Manchester

When I was a teenager, I was given the medication sodium valproate and suffered the symptoms of polycystic ovary syndrome – acne, weight gain, irregular periods, and...

I was 12 when I was first diagnosed with Epilepsy. I am not 18 almost 19 and we still have not been able to find out why I have Epilepsy. It is hard for me because I have lost some memory do to my...

How I find it to fight epilepsy

When I was just 15 I was diagnosed with epilepsy - it took 4 years to diagnose me with it. I'm now 17.

When I was 11 I had my first seizure, which...

Cwmbran

…being a “stay-at-home Dad”.

I stay at home to look after both of my small girls because of my epilepsy. There is no way that I would have been brave enough to have given up work to take...

Mark is a 'stay-at-home Dad'!

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