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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was 12 when I was first diagnosed with Epilepsy. I am not 18 almost 19 and we still have not been able to find out why I have Epilepsy. It is hard for me because I have lost some memory do to my...

I've had epilepsy since I was eight years old. I have complex partial seizures and absences.

I've never been allowed to drive and have lost a lot of jobs. My memory affected my education...

Northampton

I am the youngest in my family. I am registered epileptic despite I have not had a fit for over a year now.

I used to attend to a local group for people that are epileptic once every first...

REDHILL ARNOLD NOTTINGHAM

To be seizure free for 7 years and bring up two daughters on my own for 6 of those years.

Kent

I am currently studying HNC Photgraphy and decided having had health issues that led us down the path of investigations for epilepsy. That for My major unit I wanted to try and show what is often...

Livingston

Leanne hopes to raise £2,500 for Epilepsy Action in this year's London Marathon.

Her son, Morgan, six, has severe and difficult to treat epilepsy. Morgan started having...

I was diagnosed with epilepsy when I was two. My memories of being epilepsy-free are basically non-existent, so I when people ask me "What's it like to have epilepsy?" and "What if you didn't have...

Hyderabad

been diagonised when was 9 have been diagonosed with photosensative flashing lights stress can triger my fits when i wake feel like sleeping for 3 days i have no energy after been put on alot of...

birmingham

Sue Wild is an Accredited Volunteer for Epilepsy Action in Northern Ireland. Sue had been a university lecturer in Manchester, teaching business strategy and marketing for service industries....

Northern Ireland

Nansi Thomas is five and has temporal lobe epilepsy, having several seizures day and night. She was finally diagnosed at the age of three after a long time of suspected epilepsy.  Nansi’s...

MY EPILEPSY JOURNEY BLOG

This blog is when I got first diagnosed with childhood juvenile absence epilepsy. When I turned 5 years old the start of it was when I was just ignoring my...

Waterlooville

When exactly is an appropriate time to tell people that you are gay? Why is it necessary? When is it a good time to tell them about your epilepsy? Is it any of their business?

Neither are...

running the 10k for the 6th year running. i just love running and this year i beat my personal best time and did it in 1 hour 36 minutes and 6 seconds. I did it for 2 charities i love - epilepsy...

Rochdale

I was born with good health.

But when I was 7 years old I had a seizure in the kitchen then another on the same day.

I was rushed to the hospital and was diagnosed with epilepsy they...

Tyrone

In the prime of my life at the age of 22 my life was turned upside down when I started experiencing partial and tonic clinic seizures. After months of tests including neurological, heart and nerve...

Brisbane, Australia

I've had Epilepsy since the age of two. According to a medical form that's been written by my Adult Epilepsy Nurse, whom, when I looked back recently at some of my old blog posts, introduced me to...

Blackburn, Lancashire, England

Experienced my first seizure at 9 years old as I was leaving an assembly. It was the most bizaar experience that I still struggle to describe, like every sensation you could imagine all happening...

Penrith, Cumbria

Hi Everyone, my is Joseph and i suffer from Epilepsy since birth. My seizure was at the age of 9 months. I am 25 years old now and I have tried all the medicine but non have worked. When I was in...

London

My name is Alexandra, I am nearly 30 years of age and I live near Portsmouth.

At the age of 4 and half I was with my mum, dad and brother Angus staying with my grandparents in Scotland. One...

Portsmouth, Hampshire, England

...gaining a blackbelt in Taekwondo. When i was at school i had a complete lack of co-ordination and confidence due to epilepsy and my mother and father took us to alton towers as a treat in 1990...

Andy gained a blackbelt in Taekwondo

I was diagnosed with fractional Epilepsy 18 years ago. My epilepsy has changed a lot over the years having good periods and bad.

My consultant tried many different combinations of anti...

Newcastle Upon Tyne

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