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Epilepsy Action Family Camp

Is an Epilepsy Action run event.

Epilepsy Action Family Camp

Event Date: 
Friday 31 August 2018
Address: 
Summit Centre, The Old Drift Mine, Trelewis, Merthyr TydfilCF46 6RD, United Kingdom

Epilepsy Action Family Camp is a free residential adventure weekend from Friday 31 August to Sunday 2 September 2018. It's a really exciting opportunity for young people with epilepsy and their families to have a fantastic adventure in the Welsh Valleys.

The Epilepsy Action Family Camp is for young people with epilepsy aged 8 to 18 and their families. Younger siblings are welcome to attend, but will need to be looked after by a parent or guardian.

The family camp is for children who have epilepsy and their siblings.

Applications have now closed for families to take part in the Epilepsy Action Family Camp.

What will my child with epilepsy get from the camp?

Here's some of the feedback we got from our last family camp:

  • "My daughter who has epilepsy gained the confidence that comes from meeting and engaging with like-minded people. My eldest daughter who suffers anxiety also gained so much from the activities and meeting people in such a friendly and accepting environment."
  • "Since attending the camp, our family is closer, stronger and better at communicating."
  • "It had a big impact on my husband he understands more about epilepsy and bonded with over families and he felt comfortable talking about me and my daughter and about our epilepsy and I have never seen him ever do that before."
  • "My oldest son who has epilepsy has realised that he isn't alone and others children also have the same condition as him. It was great to meet other parents in the same position."
  • "My daughter started Rainbows the day after. I felt more confident discussing her care plan and emergency medication to the leader. I used to feel a little afraid of the reaction but actually with the right information and support she can be included in many activities in the future."

As a result of the family camp, families said they felt more confident to discuss epilepsy with their doctor/nurse and felt more encouraged to become more involved in social activities.

How long is the family camp?

The family camp runs from early Friday evening about 5pm until Sunday afternoon, about 1pm. It finishes after lunchtime.

What is the cost of the family camp?

The family camp is free

Who in the family can come to the camp?

The child with epilepsy needs to be aged between 8 and 18 to come. Brothers and sisters who don't have epilepsy can come, but if they are under 8 they can't take part in the activities so a parent or guardian will need to look after them.

Some activities have a height restriction. To find out about this please contact us on 0113 210 8885 or 0113 210 8781.

How will I get to the family camp?

Families will have to make their own way to and from the venue. Although for some families who may have a very long way to travel, it may be possible to get help with this. If you are concerned about getting to the family camp, please contact us on 0113 210 8885 or 0113 210 8781. Epilepsy Action will send out directions and the location of the nearest mainline train station nearer the weekend.

Who else will be there at the family camp?

Young people aged up to 18 years old go on the family camp. There is usually a wide mix of ages. Some people from your own area might go. Most children who go on family camps make new friends.

Who will look after us at the family camp?

Lots of adults will be at the family camp to make it go well. Each family will have a member of Epilepsy Action staff looking after them who will be your Epilepsy Action helper during the family camp. They will make sure you have everything you need to enjoy yourself. They will show you around and help you as much you need. It is your choice when you want them to help you. Epilepsy specialist nurses will be at the family camp to look after everyone, give people medicine if needed and help anyone who might have hurt themselves.

What are the accommodation arrangements?

Each family will have their own accommodation with bathroom facilities. You won’t need to share with other families. If you need to bring your own bedding or sleeping bag we will let you know. We will let you know what to bring nearer the weekend.

What if I don’t want to do an activity on the family camp?

Nobody will make you do anything you don’t want to do on the camp. Nobody will tease you or think badly of you for not wanting to do an activity. If you do not want to do an activity you can tell your Epilepsy Action helper and they will sort things out for you. It is good to try new things! You can probably think of things that you enjoy now that used to make you nervous

When will I have to get up and go to bed?

Breakfast is ready to eat at a set time each morning. You can ask your Epilepsy Action helper when this is. Families will usually meet together as a group in the morning to find out about the day.

In the evening, we usually meet up again for a family time which can include games, or a chance to chat with Epilepsy Action staff. You will probably go to bed at about the same time as you do at home. The holiday is full of activities and fresh air. Many people find that they are tired at the end of the day and may even go to bed a bit earlier than they might do at home.

Who looks after my child at night?

All children are the responsibility of their parents/guardians. Group leaders/teachers have rooms close by and will be available during the night if needed. There will be a duty manager who is contactable out of office hours if help is needed.

Will I get any time to myself?

A lot of the time you will be with other families, usually doing a planned activity. There are plenty of times when you will be able to relax. It’s your choice as no one will make you do something you don’t want to. Your Epilepsy Action helper will need to be nearby, but you can still do things by yourself, like reading, writing or drawing.

What’s the food going to be like?

All the food is freshly produced and is nutritionally balanced to help fuel you for those energetic activity sessions. Breakfast is typically a selection of cereals, fruit, yogurt and toast. Lunch is usually filled rolls, fruit, crisps, a chocolate bar and a drink. Hot lunches and dinners are typically a main and pudding.

We will need to know about any specific dietary requirements as early as possible so that we can ensure we have catered for you.

What activities do children do on the family camp?

The activities planned for the family camp include canoeing, bushcraft, caving, eco warriors and climbing. There is also time to spend with your family and evening activities. To see some of the activities at the camp, take a look at the Summit Centre.

How long do the activities last?

Activity sessions typically last for between 1hr 45mins and 2 hours depending upon the session. Some off-site activities can be for half a day or all day. Full details of the weekend’s programme will be sent to successful applicants.

What if my child has special needs?

We will work in line with the qualified group leaders or helpers responsible for the group. Instructors are very good at adapting the activities to the needs of the individual or group and will work under the guidance of the group leader.

What will I need to bring on the family camp?

You can download the Clothing Recommendation For Instructed Activities sheet for parents and guardians. It is ultimately up to parents/carers to to decide what other items to bring with the family for the camp. If in doubt what to bring, contact us on 0113 210 8885 or 0113 210 8781.

Can I bring spending money?

Yes. You can buy a range of souvenirs and gifts, sweets, crisps and drinks. Items are reasonably priced.

Will it be like school?

No. There are no lessons, no work and no homework. Some things might feel a bit like school, like eating dinner in a hall with other children. This is a holiday and you are there to have fun, and everyone is there to help you do that.

What if I’m still not sure?

Call us on 0113 210 8885 or 0113 210 8781 with any other questions you might have. Everyone who came to our previous family camp had a great time. Many of them felt nervous about it before they came but ended up making new friends and having fun.

Who is Epilepsy Action?

Epilepsy Action is a community of people committed to a better life for everyone affected by epilepsy. We want high quality, accessible epilepsy healthcare services, so that people with epilepsy have the support they need to manage their condition. We want wider awareness and understanding of epilepsy, so that people living with the condition are treated with fairness and respect. Our supporters, members, staff and volunteers are united by these common goals.

If you notice an error with this entry, please tell us by emailing nearme@epilepsy.org.uk

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