The charity Epilepsy Action
is urging people with epilepsy whose seizures are not well controlled
ho are experiencing unacceptable side effects to seek a review of
'Take Control' campaign, being launched during National Epilepsy Week
(16-23 May), aims to provide information and support to help people
with epilepsy work with their doctor towards a better quality of life.
charity estimates that up to 70 per cent of people with epilepsy could
become seizure free with the appropriate treatment, but only around
half currently achieve this.
Philip Lee, Epilepsy Action's Chief Executive, explained the aim of launching the 'Take Control' campaign:
are concerned that some people with epilepsy are not achieving the best
possible seizure control. While we accept that not everyone with
epilepsy could become seizure free, it may be possible for them to have
fewer seizures. We also want to encourage people who are experiencing
adverse side effects from their medication to discuss this with their
doctor, to see if any improvements can be made.'
Callers to Epilepsy Action's Freephone Helpline
on 0808 800 50505 can ask for a 'Take Control' pack which includes a
free Action Card and an information booklet with practical points for
discussion with your doctor or specialist and an easy-to-use ‘seizure
diary' which, once completed, can provide valuable information for
establishing the best epilepsy treatment.
Anna Morelle-Grey was diagnosed with epilepsy 16 years ago. She comments:
diagnosed with epilepsy at the age of 14 was difficult. There wasn't
much information around and I just wanted to take my medication and
forget about it. It wasn't until I was older at university that I was
urged to play more active role in the management of my condition.
Finally, after 7 years of putting up with my epilepsy, I was
re-diagnosed with the specific type I had, given new medications to
try, and am now living a more full and active life.
lot of people hear the diagnosis and have no idea what to think or do.
People should be encouraged to seek help in dealing with their
epilepsy, especially when the vast majority of people can be adequately