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of everyone affected by epilepsy

Lack of knowledge of epilepsy amongst American patients

14 August, 2000

An American study examining people with epilepsy's knowledge of the condition, has found that many did not know basic facts about their epilepsy. The study, by Long et al, is reported in Epilepsia Journal.

220 people that have epilepsy, were asked to answer questionnaires about topics related to safety, compliance, and legal issues.

30 per cent of those taking part thought epilepsy was a mental disorder, or that is was contagious.

41 per cent still felt that an object should be placed inside the mouth during a seizure to prevent injury. 

This lack of knowledge does not relate to age, educational background, or number of years that the person has had epilepsy. It highlights the need to educate people about epilepsy, especially issues related to injury prevention and legalities of driving.