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of everyone affected by epilepsy

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This article was published in May 2009. The information may be out of date. Please check our epilepsy information or our site A-Z.

Dear Diary.....

7 May 2009

Epilepsy Action is working on an appeal to raise awareness of our  ' Time for change'  campaign and to raise vital funds to work towards equal medical care for all.

Have you had a particularly GOOD experience with your epilepsy nurse/NHS treatment?


Have you had a particularly BAD experience with your lack of epilepsy nurse/NHS treatment?


Do you want to tell your story to help others with  epilepsy?  Would you be happy for your experiences to be published?

We are looking for two very contrasting stories from two people to take the form of seven diary entries describing some of the key good or bad moments from diagnosis through to your current situation.  These moments might be about your diagnosis experience, medical treatment, access to specialist or access to epilepsy nurses and support networks. 

We'd love to hear from you. Listening to your stories and experiences really highlights the need for equal services for everyone with epilepsy all over the country.


  • Diary entries should be around 100 words or less and may be edited at our discretion
  • Diary entries can either be annonymous and a false name will be used or you can use your first or full name
  • Please include your contact details so that we can get in touch if necessary

Important information

Closing Date is 12pm on Monday 11 May 2009 
If you are under 16, please ask your parent or guardian for permission to send in your diary and include proof of their permission in your email

Please note - in sending us your diary entries you will be giving us permission to use them in an appeal mailing or on our appeal website page - your identity can kept annonymous unless you specify that you are happy to be identified.

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