Epilepsy Action was shortlisted for a healthcare industry award for its online self-management course, ‘Epilepsy and you’. The course was developed to help people with epilepsy better manage their own condition. The charity was nominated for the Health Service Journal’s 2017 Awards.
‘Epilepsy and you’ was launched in April of this year. It is an eight-week course aiming to give adults the knowledge and skills to help them feel more in control of their epilepsy. It helps people set realistic goals, read other people’s experiences and keep a gratitude journal. People are also encouraged to keep a workbook they can take to medical appointments.
People who took part have said they have gained new skills, knowledge and confidence. This has helped them to better manage things like seizures, their feelings and relationships.
Georgina Matson-Phippard is online learning officer at Epilepsy Action and worked on the online course. She said: “Living with epilepsy can bring many challenges. As well as the effects of seizures, people with epilepsy are at higher risk of anxiety and depression. This can lead to isolation and loss of confidence.
“People may only see their doctor or nurse a few times a year, and appointments tend to focus more on medication than on supporting people with self-management. Epilepsy nurses often have large caseloads, which means many patients often experience long periods between appointments.
“The results speak for themselves and we’re delighted to see the programme really works.”
There is more information on ‘Epilepsy and you’ on the Epilepsy Action website.
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