A recent UK survey of 20,000 young people has been carried out. Over half said they would not date a person with epilepsy. The survey was not just about epilepsy. It was about lots of things affecting young people. The survey results were mentioned at the European Conference on Epilepsy Research in Dublin.
“Stigma around epilepsy remains a major issue”, Professor Ley Sander of UCL Institute of Neurology, speaking at the conference, said. “Often it causes as much suffering as, or more than, the physical manifestations [of epilepsy]”.
The European Forum on Epilepsy Research brings together the principal stakeholders in the epilepsy community.
Epilepsy Action campaigns to reduce stigma associated with epilepsy. The UK-based organisation provides advice and information about epilepsy, raises awareness, educates and provides a voice for people with epilepsy.