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  • This article was published in October 2014. The information may be out of date. Please check our epilepsy information or our site A-Z.
  • This article was published in October 2013. The information may be out of date. Please check our epilepsy information or our site A-Z.
  • This article was published in September 2013. The information may be out of date. Please check our epilepsy information or our site A-Z.

Stories about Dravet Syndrome

Trial finds cannabidiol may successfully reduce number of convulsive seizures in children and young adults with Dravet syndrome

25 May 2017

A new study has found that cannabidiol could be an effective treatment for people with Dravet syndrome.

Cannabidiol comes from the cannabis plant. It does not contain the part of cannabis that gives a ‘high’ – the psychoactive part.

Cannabidiol for seizure control attracts growing numbers to Colorado

29 Oct 2013

According to online reports, an increasing number of US families with children who have Dravet Syndrome, are moving to Colorado. They are doing this to benefit from the state’s more relaxed laws on the medicinal use of cannabis (marijuana).

Dravet Syndrome is a rare form of extreme epilepsy in children, with frequent seizures that are hard to control.

A non-profit making organisation, called Realm of Caring, has developed a strain of the cannabis plant. They claim it can provide relief from seizures where AEDs have not worked.

New research into Dravet syndrome

10 Sep 2013

Epilepsy Action and Dravet syndrome UK have awarded a research grant to researchers at the UK’s Institute of Neurology. The grant is to fund research into Dravet syndrome, a rare form of childhood epilepsy. The money was given by TeamMAX, a fund set up in memory of Max Miller, who had Dravet syndrome, and died as a result of SUDEP (Sudden Unexpected Death in Epilepsy) in June 2011.

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