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Stories about epilepsy

Epilepsy not a priority in NHS Long Term Plan, epilepsy organisation says

10 Jan 2019

Epilepsy organisation Epilepsy Action has said it is disappointed with the lack of priority given to epilepsy in the NHS Long Term Plan.

The Long Term Plan was published on 7 January, detailing how the NHS intends to move healthcare forward over the next 10 years.

In a post, Epilepsy Action highlighted that while epilepsy is mentioned in the plan, it is not made a priority.

Specialist clinicians in the UK can prescribe cannabis-based medicines to people with “exceptional clinical need”

1 Nov 2018

From today, specialist clinicians can prescribe cannabis-based medicines in the UK to patients with “exceptional clinical need”. They will no longer need to apply to an expert panel for a licence.

The UK government has rescheduled cannabis-based medicines under the Misuse of Drugs regulations 2001. They are now no longer listed under Schedule 1 alongside substances considered to have no therapeutic effect. 

Danny Tozer inquest finds no neglect in care, but unsatisfactory communication with family

3 May 2018

An inquest into the death of a 36-year-old man with epilepsy found that he died of natural causes.

Danny Tozer had epilepsy, autism and a learning disability. He was a resident at a supported living home when, in 2015, he died after having a seizure. The coroner concluded that Danny died from sudden unexpected death in epilepsy (SUDEP).

Brexit Health Alliance urges Brexit negotiators to put patients first

9 Apr 2018

The Brexit Health Alliance has warned that people may face long delays in getting new medicines as a result of Brexit. Research cooperation and access to clinical trials may also be affected, the organisation said.

The alliance is urging Brexit negotiators to prioritise patients and public health during the second phase of negotiations.

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