A “concerning doubling” in maternal deaths due to sudden unexpected death in epilepsy (SUDEP) was seen between 2016-18 compared to 2013-15, a new report has shown.
A new study from the Netherlands has looked at the effectiveness of a new sleep seizure detection device. The device – Nightwatch – is a bracelet worn on the arm. It uses heart rate and movement to sense what the authors called ‘major’ seizures.
People who have lost a relative because of sudden unexpected death in epilepsy (SUDEP) believe neurologists should discuss the risk of SUDEP with patients.
ITV has released the Britain’s Got Talent audition tape of Lincolnshire singer Martin Morgan, who died in July of sudden unexpected death in epilepsy (SUDEP).
A collaboration between clinicians, the NHS and epilepsy charity SUDEP Action today comes to fruition with the launch of a new smartphone app. The app is designed to help you monitor your own epilepsy
An article in the British Medical Journal (BMJ) has called attention to how much more might be done to avoid unnecessary deaths in epilepsy. Could primary care doctors be in the best position to monitor risks?
A new seizure alarm system aims to reduce the risk of sudden unexpected death in epilepsy (SUDEP) during the night. Called PulseguardTM the system has been designed by a family for their teenager Tom, who has epilepsy
This holiday, Epilepsy Action offers you a chance to remember someone who can’t be with you this year. Donate now for a Shining Star decoration with a personalised inscription and pride of place at the Leeds Minster Carol Concert
Alyssa O’Neill was an 18-year-old cheerleader from Pennsylvania, US. In September, she died of sudden unexpected death in epilepsy (SUDEP). Her mum, Sarah O’Neill, tells Peter Fox how the last message Alyssa ever sent sparked a global movement of spontaneous kindness
Epilepsy Action and Dravet Syndrome UK have awarded a research grant to researchers at the UK’s Institute of Neurology. The grant is to fund research into Dravet syndrome, a rare form of childhood epilepsy. The money was given by TeamMAX, a fund set up in memory of Max Miller, who had Dravet syndrome, and died as a result of SUDEP (Sudden Unexpected Death in Epilepsy) in June 2011.
