A new report has been launched as part of an ongoing initiative from the Royal College of Paediatrics and Child Health (RCPCH). The report explores epilepsy care for children and young people in the UK – and shows that services are improving
Stories about young people
The Edwards aim to recognise educational establishments who are providing a supportive learning environment to pupils or students with epilepsy. Epilepsy Action is encouraging nurseries, schools, colleges and universities from across the UK to get involved and show their outstanding support for students with epilepsy. Nominations can be made by educational establishments or parents and students.
A special police tracker dog has located a missing girl with epilepsy. The girl, a 15-year-old student, had disappeared from her school in Newark, New Jersey, US.
The local Sherriff’s office requested a ‘K-9’ team be sent to the girl’s school, North Star Academy Middle School. The tracker dog, a bloodhound called ‘Mac’, was given the girl’s scent from her jacket which she had left behind.
Mac tracked the girl from the school. The child was discovered lying unconscious on the ground following a seizure.
A new Scandinavian study of young people shows that epilepsy is the number two cause of loneliness in this group.
Dr Kristin Alfstad surveyed over 10,000 young people in Norway to find out how they see their social relationships with family, classmates and so on. The survey used statements like 'I have a feeling nobody knows me well'. Respondents were then invited to say how correct they felt the statement was.
True Stories Productions, an independent television company, is looking for young people aged 16-25 in the UK with uncontrolled epilepsy who may be interested in taking part in a documentary. The documentary will explore the issues and dilemmas young people face in growing up with epilepsy.
We are taking a whole new look at what we do online for children and young people. We want to deliver a clear and well targeted online resource for those with epilepsy. To do the best possible job, we need to consult with children and young people with epilepsy, their brothers and sisters, and parents and carers.
Imagine being able to tell your friends about your epilepsy and finding that it’s no big deal. Imagine getting the epilepsy information you need when you want it, leaving you free to just get on with it.
The theme of National Epilepsy Week this year is young people with epilepsy. Having epilepsy, seizures and taking anti-epileptic drugs may have a huge impact on the lives of teenagers with epilepsy. It may affect how you cope in lessons, what sports you play and what time you go to bed.