We fight to improve the lives
of everyone affected by epilepsy

"Treatment gap" highlighted by uk epilepsy charities

6 Oct 2004

Greater health
service investment would help nearly 80,000 people with epilepsy in the
UK to become seizure free and save over £200 million each year,
according to the Joint Epilepsy Council (JEC), the umbrella body of 24
epilepsy organisations in the UK and Ireland.

the JEC's new manifesto, the charities are calling for prompt
Government action to address this treatment gap so that patients who
could be free of seizures actually receive the best possible care.

estimated cost of current misdiagnosis and spending on disability
benefits for people who could be seizure free is over £200 million. For
less than that sum, the JEC believes significant improvements could be
made to services in the UK through:

  • A significant increase in the number of consultant neurologists for adults and children. Improved training for GPs
  • The introduction of an epilepsy tsar in each region to improve service co-ordination

JEC chairman David Josephs said:

for people with epilepsy in the UK have improved in the last 20 years.
Indeed, some of the world's leading epilepsy experts practice here but
service levels are very patchy across the country. The JEC is
presenting a logical business case for increased NHS investment in
epilepsy. The measures we propose will help to close the treatment gap,
improve patient care, reduce high misdiagnosis rates and give people a
better quality of life. In fact these measures would be cost neutral.'


Joint Epilepsy Council document: Epilepsy - The Case For Investment