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of everyone affected by epilepsy


The UK epilepsy and pregnancy register

These diaries were written in 2012 by mums with epilepsy. Lots of mums-to-be have found them really helpful and reassuring.

For up-to-date information about epilepsy and having a baby, go to Epilepsy Actions's advice and information pages

Rebecca: My Neurologist gave me the number for a research nurse at the UK Epilepsy and Pregnancy Register. The conversation I had with her was very helpful. She talked to me specifically about lamotrigine and explained it was one of the safer drugs, but there was still a small increased risk of birth defects.

However, this evidence was for women taking a higher dose than me so the picture was still not completely clear. She couldn't tell me what to do of course but my decision was starting to sway towards carrying on with the medication. I had to weigh up the likelihood of the baby being affected by the medication against the implications for us both if I were to become ill again.

Signing up is important

Sarah: I decided during my first and second pregnancy to join the pregnancy register. I believed it was important to give the medical professionals my data. This allows them to build a better picture of what we [women with epilepsy] experience. It will help women who are planning pregnancies in the future to make decisions. After registering it is of no extra effort to you, as your caregivers [medical team] submit the data. 

More information on the UK epilepsy and pregnancy register

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