Epilepsy Action continues to provide a support service epilepsy specialist nurses:
Epilepsy Action sends out a fortnightly newsletter to all nurses with an interest in epilepsy, containing news, information, questions from and to other nurses and research. View an earlier newsletter.
Email firstname.lastname@example.org to subscribe.
Epilepsy Action patient information materials, for example leaflets and booklets are provided free of charge to all nurses who are professional members of Epilepsy Action. Membership also includes free copies of the magazine EP: Epilepsy Professional and access to Seizure, the European journal for epilepsy.
We have a wide range of books, booklets factsheets about epilepsy. Please take a look at what we have available.
Vagus Nerve Stimulator (VNS) Programming Guidlines
Produced by nurses representing Adult and Paediatric Services throughout the UK & Ireland - March 2016, these VNS programming guidelines aim to ensure the highest standards of care are provided to patients across the UK and Ireland. The treatment objective is always to find a regime that is safe and comfortable to the patient which maximises quality of life and seizure control.
Supporting nurses who deliver training
Epilepsy Action learning contains video-based resources targeted at school staff, practice nurses, health and social care staff, adults and children with epilepsy and the general public needing awareness of epilepsy first aid
Epilepsy Action and LivaNova offer 4 annual Nicola Pickard bursaries for UK based nurses who wish to undertake professional development in epilepsy.
For information about issues with anti-epilepsy drugs please visit our Drugwatch page.
The Epilepsy Alliance is a partnership between Epilepsy Action and the EpilepSy nurse association (ESNA). We aim to support nurses to develop their understanding of epilepsy and their skills in meeting the needs of adults and children with epilepsy.
Epilepsy Alliance plan training designed specifically for epilepsy nurses. Our next course will be 'How to have difficult conversations with patients using shared decision making skills'.
Between 1995 and 2014 Epilepsy Action funded 91 Sapphire epilepsy specialist nurses through its Sapphire scheme. The scheme originated from Epilepsy Action’s 45th Anniversary year in 1995, primarily funding the first year of an epilepsy nurse after which the NHS took over the ongoing costs.
The Sapphire scheme closed in 2014 and funding is no longer available.
The Sapphire Nurse Scheme reflected Epilepsy Action's commitment to improving health care services for people with epilepsy, through the provision of epilepsy specialist nurses working in partnership with funders and health care providers.