We exist to improve the lives
of everyone affected by epilepsy

Support from Epilepsy Action for epilepsy nurses

Epilepsy Action continues to provide a support service epilepsy specialist nurses:


Sample esn newsletter

Epilepsy Action sends out a fortnightly newsletter to all nurses with an interest in epilepsy, containing news, information, questions from and to other nurses and research. View an earlier newsletter.

Email poconnor@epilepsy.org.uk to subscribe.


Epilepsy Action patient information materials, for example leaflets and booklets are provided free of charge to all nurses who are professional members of Epilepsy Action. Membership also includes free copies of the magazine EP: Epilepsy Professional and access to Seizure, the European journal for epilepsy.

Nurses information catalogue

We have a wide range of books, booklets factsheets about epilepsy. Please take a look at what we have available.

Vagus Nerve Stimulator (VNS) Programming Guidlines

Download nowProduced by nurses representing Adult and Paediatric Services throughout the UK & Ireland - March 2016, these VNS programming guidelines aim to ensure the highest standards of care are provided to patients across the UK and Ireland. The treatment objective is always to find a regime that is safe and comfortable to the patient which maximises quality of life and seizure control.

Download the pdf

Online trainingSupporting nurses who deliver training

Epilepsy Action learning contains video-based resources targeted at school staff, practice nurses, health and social care staff, adults and children with epilepsy and the general public needing awareness of epilepsy first aid



Children's animations designed to help children to understand their condition.


Nicola Pickard bursaries

Nicola Pickard bursaries

Epilepsy Action and LivaNova offer 4 annual Nicola Pickard bursaries for UK based nurses who wish to undertake professional development in epilepsy.

Learn more



For information about issues with anti-epilepsy drugs please visit our Drugwatch page.


Epilepsy Alliance

Epilepsy AllianceThe Epilepsy Alliance is a partnership between Epilepsy Action and the EpilepSy nurse association (ESNA). We aim to support nurses to develop their understanding of epilepsy and their skills in meeting the needs of adults and children with epilepsy.

Epilepsy Alliance trainingEpilepsy Alliance plan training designed specifically for epilepsy nurses. Our next course will be 'How to have difficult conversations with patients using shared decision making skills'.


Sapphire epilepsy specialist nurses

Sapphire scheme

Between 1995 and 2014 Epilepsy Action funded 91 Sapphire epilepsy specialist nurses through its Sapphire scheme. The scheme originated from Epilepsy Action’s 45th Anniversary year in 1995, primarily funding the first year of an epilepsy nurse after which the NHS took over the ongoing costs.

The Sapphire scheme closed in 2014 and funding is no longer available.

The Sapphire Nurse Scheme reflected Epilepsy Action's commitment to improving health care services for people with epilepsy, through the provision of epilepsy specialist nurses working in partnership with funders and health care providers.

Event Date: 
Wednesday 14 September 2016 - 15:38

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