Support from Epilepsy Action for epilepsy nurses

Covid-19 update

This page contains the latest info on Epilepsy Action's services.

If you have ordered literature:There will be some delay in posting items out that have been ordered as we will only be sending out orders once per week. Please bear with us for any delays.

You may prefer to download our catalogue PDF or emailing Kath at

Professional membership

Epilepsy Action professional membership allows specialist nurses to access the latest information materials free of charge for your patients.

Your membership also includes the magazines 'Epilepsy Today' and 'Epilepsy Professional' and online access to 'Seizure' journal so you can stay up-to-date with all the latest epilepsy news, views and research.

Find out more and join today

Vagus Nerve Stimulator (VNS) Programming Guidlines

Download nowProduced by nurses representing Adult and Paediatric Services throughout the UK & Ireland - March 2016, these VNS programming guidelines aim to ensure the highest standards of care are provided to patients across the UK and Ireland. The treatment objective is always to find a regime that is safe and comfortable to the patient which maximises quality of life and seizure control.

Download the pdf

Supporting nurses who deliver training

Online training

Epilepsy Action learning contains video-based resources targeted at school staff, practice nurses, health and social care staff, adults and children with epilepsy and the general public needing awareness of epilepsy first aid



Children's animations designed to help children to understand their condition.


See the complete set of animations


Nicola Pickard bursaries

Nicola Pickard bursariesEpilepsy Action and LivaNova offer 4 annual Nicola Pickard bursaries for UK based nurses who wish to undertake professional development in epilepsy.

More about the

Drugwatch - up-to-date information about epilepsy drugs

DrugwatchFor information about issues with anti-epilepsy drugs please visit our Drugwatch page.

Check Drugwatch

Combined nursing profiles

A new document from NHS employers, giving a profile of all the nursing bands. This will be useful for job matching when a job description is written either for a new post or re-banding. See the document here.

Epilepsy Alliance

Epilepsy AllianceThe Epilepsy Alliance is a partnership between Epilepsy Action and the Epilepsy nurse association (ESNA). We aim to support nurses to develop their understanding of epilepsy and their skills in meeting the needs of adults and children with epilepsy.

Epilepsy Alliance trainingEpilepsy Alliance plan training designed specifically for epilepsy nurses. Our next course will be 'How to have difficult conversations with patients using shared decision making skills'.

Sapphire scheme

Sapphire epilepsy specialist nursesBetween 1995 and 2014 Epilepsy Action funded 91 Sapphire epilepsy specialist nurses through its Sapphire scheme. The scheme originated from Epilepsy Action’s 45th Anniversary year in 1995, primarily funding the first year of an epilepsy nurse after which the NHS took over the ongoing costs.

The Sapphire scheme closed in 2014 and funding is no longer available.

The Sapphire Nurse Scheme reflected Epilepsy Action's commitment to improving health care services for people with epilepsy, through the provision of epilepsy specialist nurses working in partnership with funders and health care providers.

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