We fight to improve the lives
of everyone affected by epilepsy

Resources to support epilepsy service improvement

Use the resources below to plan epilepsy services and make a case for more resources.

Optimum clinical pathway: epilepsy

A new optimum clinical pathway has been developed for epilepsy. The pathway was developed, along with a series of pathways for other neurological conditions following a series of workshops with clinicians, patient groups and people with neurological conditions.

The pathway sets out what good treatment, care and support involves. This includes treatment and support for people who may be experiencing a first seizure, right through to people who have lived with epilepsy for a long time. The pathway can support the improvement of services and set out aspirations for good care. It can also enable effective commissioning of epilepsy services locally and nationally.

Download the PDF

NHS RightCare epilepsy toolkit

The NHS RightCare epilepsy toolkit has been developed to identify the priorities in epilepsy care and actions commissioners can take to improve their epilepsy service. The toolkit has been put together in partnership with Epilepsy Action, SUDEP Action and Young Epilepsy among other stakeholders, and is supported by NICE.

Commissioners responsible for supporting people with epilepsy should use the toolkit to identify and implement improvements to their epilepsy service.

Download the PDF

RightCare Neurology Focus Packs

The NHS RightCare neurology focus packs can help commissioners and Clinical Commissioning Groups to understand how the quality of their service compares to others. They provide detailed information on a range of metrics such as epilepsy mortality, admissions and hospital stays.

The packs can be used to highlight areas for improvement.

Select your Focus Pack

Epilepsy data and what it can tell us

Epilepsy Action has collated a series of maps and data tables to help us understand more about epilepsy healthcare services across the UK. The maps allow you to look at services by health board and trust, and at regional and national level. They enable health professionals to see how services in different areas compare to others nationally – and how their service compares to others.

This data will be useful to health professionals, commissioners and others interested in providing high quality health services for people with epilepsy.

Explore the data

Epilepsy Commissioning Toolkit

Epilepsy Action together with Epilepsy Society created the Epilepsy Commissioning Toolkit. This is a hub of tools and resources to help commissioners improve or redesign epilepsy services.

Epilepsy Specialist Nurse Competencies

These are helpful in understanding the expectations of different nurse bandings. The competencies also contain sample job descriptions of band 6 and band 7 ESN posts. We recommend a weekly plan to aid capacity planning to show what the ESN will be focussing on in addition to patient contact, eg admin, education, service development and professional development

Access the toolkit

Epilepsy12

Epilepsy12 is a quality improvement audit, focusing on care for children and young people with seizures and epilepsies in England and Wales. The audit, run by the Royal College of Paediatrics and Child Health (RCPCH), measures the care and outcomes of paediatric epilepsy care and makes recommendations for improvements.

The findings of round three of the audit have recently been published.

Access Epilepsy12

Value of epilepsy specialist nurses

Epilepsy Action commissioned researchers at the University of Sheffield to research the role of ESNs. To do this, they looked at all the evidence that has been published so far and carried out a mapping review. The researchers looked at two things: all of the roles ESNs fulfil and the quality of the evidence. They then produced a diagram (or map) of this information.
The information can help those planning local NHS epilepsy services.

Read the full report

Epilepsy and Learning Disability Services

New guidance has been developed by a multi-disciplinary group of professionals with input from people with epilepsy and learning disabilities and carers. It describes the elements of a good quality integrated service for people with a learning disability and epilepsy. Our summary guide encourages commissioners and providers to audit what is available for their population and assess the extent to which needs are currently met. It offers examples of ways to increase collaboration, improve services and consistency in epilepsy provision, and reduce unwarranted variation.

Read our summary

It can be used to enables commissioners to ask questions and encourage provider cooperation, quality improvement and workforce development. Where gaps in provision or quality are identified, it shows how new or enhanced services could be commissioned. We encourage pragmatic provider development solutions that can be facilitated as part ICS work streams, clinical audit programmes or quality improvement objectives. We suggests that local care pathways are documented, and protocols/ practices agreed to deliver consistent and good care.

See the full guide

Advocates reviewing the expertise and capacity of the workforce using competency frameworks to support skills and knowledge development and role extension.

Easy read version

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