We exist to improve the lives
of everyone affected by epilepsy

Patient panel role profile

Volunteer title

Epilepsy Action patient panel member

Purpose of role

Take part in research studies.

Support and supervision – who will look after me?

Amanda Stoneman, Temporary Research Administration Officer

What will I do? (Main tasks)

Panel members will be informed of opportunities to:

  • Complete surveys and questionnaires
  • Take part in an interview or focus group
  • Take tests, such as memory
  • Comment on taking part in research studies

Mostly research studies need to recruit specific groups of people. Therefore, members may not be eligible to take part in some studies.

Time commitment – how long do I need to be available for and when?

Participation is optional. Volunteers are free to take part in studies at times that suit them.

Will I need training?

No training is needed.

Will I need to travel?

Unlikely, but dependent on project.

Will I receive expenses?

Expenses are normally paid to people attending interviews or focus groups.

Person specification – what skills and experience do I need?

Essential

  • Have a personal connection to epilepsy
  • Live in the UK

Useful

Have access to the internet and email

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