Purpose of role
To ensure that people with epilepsy, and others with a personal connection to epilepsy, have a voice in the research that is carried out into the condition.
Support and supervision – who will look after me?
Amanda Stoneman, Temporary Research Administration Officer
What will I do? (Main tasks)
There are a range of opportunities available. Volunteers are free to take part in areas that interest them.
Tasks can include:
• Reviewing applications for Epilepsy Action research funding
• Commenting on research studies for external researchers
• Reviewing articles in Seizure: European Journal of Epilepsy
• Sitting on research project management/steering groups
• Presenting information about research to non-professionals
Time commitment – how long do I need to be available for and when?
This can vary according to the task. Volunteers are free to undertake work at times that suit them.
Will I need training?
No training is necessary for most roles. However, optional Introduction to Research events are regularly available. This training is delivered with other charities.
Will I need to travel?
Unlikely. Only if you participate in a steering group or give a presentation.
Will I receive expenses?
Reasonable expenses for any necessary travel in the role will be paid.
Person specification – what skills and experience do I need?
- Interest in epilepsy research
- Have a personal connection to epilepsy
- Live in the UK
- Interest in learning more about epilepsy research
- Have access to the internet and email