We exist to improve the lives
of everyone affected by epilepsy

Research volunteer role profile

Volunteer title

Research volunteer

Purpose of role

To ensure that people with epilepsy, and others with a personal connection to epilepsy, have a voice in the research that is carried out into the condition.

Support and supervision – who will look after me?

Amanda Stoneman, Temporary Research Administration Officer

What will I do? (Main tasks)

There are a range of opportunities available. Volunteers are free to take part in areas that interest them.
Tasks can include:
•    Reviewing applications for Epilepsy Action research funding
•    Commenting on research studies for external researchers
•    Reviewing articles in Seizure: European Journal of Epilepsy
•    Sitting on research project management/steering groups
•    Presenting information about research to non-professionals

Time commitment – how long do I need to be available for and when?

This can vary according to the task.  Volunteers are free to undertake work at times that suit them.

Will I need training?

No training is necessary for most roles. However, optional Introduction to Research events are regularly available. This training is delivered with other charities.

Will I need to travel?

Unlikely.  Only if you participate in a steering group or give a presentation.

Will I receive expenses?

Reasonable expenses for any  necessary travel in the role will be paid.

Person specification – what skills and experience do I need?


  • Interest in epilepsy research
  • Have a personal connection to epilepsy
  • Live in the UK


  • Interest in learning more about epilepsy research
  • Have access to the internet and email

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