We exist to improve the lives
of everyone affected by epilepsy


Dr Udo Wieshmann

The Walton Centre for Neurology and Neurosurgery, Liverpool


There are over 440,000 people in the UK who have been diagnosed with epilepsy and are taking anti -epileptic drugs (AEDs). There has been an unprecedented increase in the number of AEDs for the treatment of epilepsy over the last 20 years. However, AEDs may cause side effects. Unfortunately, there is often a long delay between the introduction of an AED and the recognition of side-effects by doctors.

The aim of the research is to find out the frequency of AED side-effects by asking patients.  This will be done by setting up a UK AED register that will record the effectiveness and side-effects of AEDS. The register will initially be open to people with epilepsy in the Mersey area, it will then be rolled out across the UK.

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