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Do you think the emergency services should be able to see your medical records?

Study title

Do you think the emergency services should be able to see your medical records?

Institution

University of Liverpool

About the study

When caring for someone with epilepsy, ambulance crews and A&E staff do not usually get to see information about a person’s medical history. The NHS wants to make it easier for them to see medical records. This will improve the care that they can offer them.

Researchers from the University of Liverpool are holding focus groups to hear what people with epilepsy, their close family and friends think about this.

People who take part in this research will each receive a £10 voucher and travel expenses will be paid.

When will this study be recruiting?

The study is recruiting until the end of June 2019.

What will participants be asked to do?

  • Agree to take part in a group discussion, led by a researcher
  • You can be accompanied by a family member or friend, if you prefer
  • Your travel expenses will be paid
  • As a thank you for taking part, you will receive a £10 voucher

Who can take part?

You can take part if you:

  • Are over 16 years or over
  • Have had a diagnosis of epilepsy for at least one year
  • Take an anti-epileptic medication
  • Have had contact with the ambulance service and/or been to a hospital emergency department in the last 12 months, for a reason related to your epilepsy
  • Can read, speak and understand English well
  • Can attend a focus group discussion at the University of Liverpool

Family and friends of people with epilepsy who have had contact with the ambulance service and/or been to a hospital emergency department in the last 12 months can also take part

Who is conducting the research?

Louise Roper, Chartered health psychologist, University of Liverpool.

Who has reviewed this study?

The research has been reviewed by the Health and Life Sciences Research Ethics Committee (Psychology, Health and Society) at the University of Liverpool.

Interested?

If you are interested in taking part, please contact Louise Roper:

Email: louise.roper@liverpool.ac.uk
Phone: 0151 795 5326

Event Date: 
Tuesday 12 May 2015 (All day)

Comments: read the 3 comments or add yours

Comments

I'm actually sorry that I haven't needed their services recently because I would like to support this research ! Previous experience has given me a firm opinion & I would like to take this chance to thank Liverpool University for the research.

Submitted by Beverley Jameson on

If in any way I can support this, i would very much like to. As i am very lucky and had brain surgery to rid me of my seizures but before having surgery i definitely did need the help of the emergency services on more than a few occasions.

Submitted by Tracy Whittaker on

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