Do you think the emergency services should be able to see your medical records?
University of Liverpool
About the study
When caring for someone with epilepsy, ambulance crews and A&E staff do not usually get to see information about a person’s medical history. The NHS wants to make it easier for them to see medical records. This will improve the care that they can offer them.
Researchers from the University of Liverpool are holding focus groups to hear what people with epilepsy, their close family and friends think about this.
People who take part in this research will each receive a £10 voucher and travel expenses will be paid.
When will this study be recruiting?
The study is recruiting until the end of June 2019.
What will participants be asked to do?
- Agree to take part in a group discussion, led by a researcher
- You can be accompanied by a family member or friend, if you prefer
- Your travel expenses will be paid
- As a thank you for taking part, you will receive a £10 voucher
Who can take part?
You can take part if you:
- Are over 16 years or over
- Have had a diagnosis of epilepsy for at least one year
- Take an anti-epileptic medication
- Have had contact with the ambulance service and/or been to a hospital emergency department in the last 12 months, for a reason related to your epilepsy
- Can read, speak and understand English well
- Can attend a focus group discussion at the University of Liverpool
Family and friends of people with epilepsy who have had contact with the ambulance service and/or been to a hospital emergency department in the last 12 months can also take part
Who is conducting the research?
Louise Roper, Chartered health psychologist, University of Liverpool.
Who has reviewed this study?
The research has been reviewed by the Health and Life Sciences Research Ethics Committee (Psychology, Health and Society) at the University of Liverpool.
If you are interested in taking part, please contact Louise Roper:
Phone: 0151 795 5326