The experiences of young people with epilepsy transitioning from paediatric to adult services and how this experience shaped their engagement in adult services.
The Institute for Employment Studies, Brighton, UK, is carrying out this research, funded by Epilepsy Action.
About the study
Epilepsy Action has commissioned the Institute for Employment Studies (IES) to carry out some research to identify what good employment support for people with epilepsy should look like. Here is more information: Employment support research
What will participants be asked to do?
We would like to invite you to apply to take part in a group discussion with other people with epilepsy.
The discussions will focus on experiences of looking for a job and working, including:
- What you think employers and colleagues do well, or less well, when supporting people with epilepsy
- Stigma, misunderstandings and myths about epilepsy that you are aware of amongst employers and colleagues.
We are especially interested in hearing suggestions for what employment support would make it easier for people with epilepsy to:
- Get jobs
- Have a satisfying and successful time in employment
The discussion group (called focus groups) will be small, with no more than six people, to promote openness and sharing. It will last about an hour and a half and will take place in the evening during August or September in your local area. An IES researcher will chair the discussion and your participation will be confidential and anonymous.
When you get in touch to indicate your interest, your contact details will be passed to the researchers at IES, using a secure way of transferring information. Next, a member of their research team would get in touch with you by telephone, to conduct an interview. The telephone interviews will help the researchers select a group of people, with different experiences, to take part in the focus groups.
For further information about the research, you can read the project briefing.
Who can take part?
You can take part if you:
- Have epilepsy
- Are aged 18 or older
- Have recent experiences of looking for work and/or of being in work
Who is conducting the research?
Researchers from the Institute for Employment Studies
Who has reviewed this study?
IES’s internal ethics committee have checked ethical considerations for the project
If you would be interested in taking part, please send an email to Amanda Stoneman firstname.lastname@example.org, who is the research and evaluation officer at Epilepsy Action
- Your name
- Your telephone number
- Your address (this will help the researchers plan where would be a good place to hold the focus group)
- Permission to pass your details on to the research team (we won't give your details to anyone else)
Once we have received this information, a researcher will contact you by telephone in the next couple of weeks.