Epilepsy Action believes that it is very important for people with epilepsy and their families to understand the risks associated with epilepsy. Knowing about the risks can help people to make decisions about their epilepsy treatment and their lifestyle.
Epilepsy Action is working on a project to ensure that people with epilepsy understand the risk of epilepsy-related death. We have appointed an epilepsy specialist, Dr Heather Angus-Leppan, consultant neurologist, to lead the project. She will be developing new guidelines for healthcare professionals.
We would be very grateful for your help, by giving us your views about information given on epilepsy-related risks and what more should be done to reduce these risks.
Am I eligible to take part?
We would like to hear from you if you are a:
- Person with epilepsy over the age of 18, who is receiving care for your epilepsy
- Parent/carer of a person with epilepsy under the age of 18, who is receiving care for their epilepsy
- Carer of an adult with epilepsy, who is receiving care for their epilepsy
- Non-medical professional who works with people with epilepsy
- Epilepsy clinical nurse specialist
- Learning disability (intellectual disability) clinical nurse specialist
- Nurse - other expertise
- Doctor - other expertise
- Allied healthcare professional
What will I have to do?
- Answer an online survey, at a time to suit you
- The survey might take you around 20 to 30 minutes to complete
- Your answers will be anonymous
- We will ask for your name at the end of the survey. You only have to give this if you want to be contacted in the future about this research
How do I get involved?
- Click on the button to take the survey
Is there a deadline?
- We will be closing the survey on 17 June 2019
Who is carrying out the research?
- Dr Heather Angus-Leppan, consultant neurologist