We exist to improve the lives
of everyone affected by epilepsy

Experiences of mothers with epilepsy

Study title

Understanding the challenges and impact of parenting with epilepsy: A focus on mothers


University of Birmingham (School of Psychology), UK

About the study

In this study we wish to understand the issues that affect parenting in women with epilepsy. We have already completed the first stage of this research, which involved interviews and focus groups with mothers with epilepsy. We are now carrying out an online survey, to further our understanding of the experiences of mothers with epilepsy.

We will ask women with epilepsy to rate a series of statements about their possible experiences of pregnancy, parenting and the information they received. We plan to use this to update the information that is provided to women by healthcare providers and other support organisations. This study will also help us to plan future research about parenting and epilepsy.

When will this study be recruiting?

Recruitment is taking place now, until the end of March 2017. 

What will participants be asked to do?

Participants will be asked to complete an online questionnaire about their experiences of being pregnant and parenting with epilepsy.

If you would like to complete the questionnaire, please send an email to Lucy Morgan, l.g.f.morgan@bham.ac.uk

Lucy will send you a link.

Who can take part?

You can take part if you:

  • Are a woman with epilepsy
  • Are over the age of 18
  • Are currently pregnant, or have a child under the age of 18

This study is open to women who live anywhere in the world.

Who is conducting the research?

The research team conducting this study from the School of Psychology at the University of Birmingham are Dr Amanda Wood, Dr Jacqueline Blissett, Dr Michael Larkin, and Dr Lucy Morgan.

Who has reviewed this study?

Members of the Scientific Advisory Panel of Epilepsy Action, as well as anonymous experts in the field, have reviewed this study. The Science, Technology, Engineering and Mathematics Ethical Review Committee at the University of Birmingham also reviewed the project, and approved the study on 22/07/15.


If you would like to take part in the study or learn more about its progress, then please contact:

Dr Lucy Morgan (Research Associate)
Email: l.g.f.morgan@bham.ac.uk

Dr Amanda Wood (Principal Investigator)
Email: a.g.wood@bham.ac.uk

Event Date: 
Tuesday 12 May 2015 - 13:49

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