Understanding the experiences of pre-conception counselling for women with epilepsy
The Walton Centre NHS Foundation Trust
About the study
Women with epilepsy, who are of child bearing age, are advised to have pre-conception counselling. This is the care and advice a woman receives before becoming pregnant and includes topics such as contraception and preparing for pregnancy.
Little is known about how well the NHS is doing in supporting women and families with pre-conception counselling. Dr Janine Winterbottom, an Advanced Nurse Specialist in Epilepsy and Epilepsy Action Sapphire Nurse, would like to find out more.
This survey will ask about experiences of pre-conception care and find out about the issues that are important to people with epilepsy. This includes people who:
- Have experience of pregnancy
- Are preparing for pregnancy
- Have experience of trying for a pregnancy, from the perspective of a person living with epilepsy
This is an exploratory survey to:
- Increase understanding of what is wanted by women, their families and supporters as they consider planning pregnancy
- Increase understanding of what is currently available
- Explore some of the barriers and facilitators to achieving a planned pregnancy
The results will help researchers and health professionals from the University of Liverpool plan to apply for funding. They want to complete a study that will explore pre-conception counselling in more detail.
When will this study be recruiting?
This survey is recruiting now.
What will participants be asked to do?
You will be asked to complete an anonymous online questionnaire. This should take no longer than 15 minutes. It will involve both multiple choice questions and open questions for you to write your opinion.
You will be given the opportunity to leave your name at the end of the survey, only for the purpose of receiving more information about this survey. However, you do not have to give any details if you choose not to.
Who can take part?
You can take part if you live in the UK and are:
- A woman with epilepsy at any stage of your life or
- A family member, partners/spouses or friend of a woman with epilepsy or
- A parent or carer, on behalf of a woman with epilepsy and additional needs or
- A healthcare provider for women with epilepsy
Who is conducting the research?
Dr Janine Winterbottom, Advanced Nurse Specialist in Epilepsy, The Walton Centre NHS Foundation Trust, with help from Amanda Stoneman, Research and Evaluation Officer, Epilepsy Action.
Who has reviewed this study?
Reviewed and accepted by The Walton Centre Research Development and Innovation Department.