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of everyone affected by epilepsy

How should ambulance services care for people with epilepsy?

What's it about?

Ambulances are sometimes called for when a person with epilepsy has a seizure. At the moment we do not know how people with epilepsy want to be cared for by the ambulance service.

For example, little is known about where people want to be taken. Also, how does this differ depending on where the seizure happened, what type of seizure it was and who called the ambulance?

We are asking people with epilepsy to complete a survey, to tell us what type of care they would prefer when they have a seizure.

We are also asking close family members and friends of people with epilepsy to complete the survey. This is because family and friends often care for someone when they have a seizure and they are there when ambulances come. This means they can have lots of important information to share.

We shall use the information from the survey to help the NHS offer care that matches what patients and those close to them want.

How can I take part?

You can take part if you:

  • Have a diagnosis of epilepsy
  • Have been seen by an ambulance service in the last 12 months for epilepsy
  • Are aged 18 years or over
  • Are prescribed antiepileptic medication
  • Are able to complete a survey in English by yourself
  • Do not have a terminal illness or severe psychiatric condition
  • Live in England
 
You can also take part if you:
  • Are a family member or friend of a person with epilepsy who has had contact with an ambulance service for epilepsy in the last 12 months
  • Are over the age of 16
  • Are able to complete a survey in English by yourself
  • Live in England

What will I have to do?

We will ask you to complete a single survey by yourself. This usually takes 20 to 40 minutes to do.

The survey will ask you some simple things about you, your connection with epilepsy and what contact you, or the person with epilepsy that you know, has recently had with the NHS. You will also be asked how epilepsy impacts on your life.

You will then be shown some different seizure stories and hear about some possible types of care the ambulance service could offer. You will be asked which you think is best. There are no ‘right’ or ‘wrong’ answers. You will answer most questions by simply ticking boxes alongside the answer that you choose.

Everyone who takes part will be given the option to be entered into a prize draw and will have the chance to win one of four £50 shopping vouchers.

 

How do I get involved?

If you are interested in taking part, please visit the study webpage, by clicking the button below. There you will find more information about the survey and a link to take part. You will be asked to sign a form saying that you agree to take part.

Take part in the study

Is there a deadline?

This survey will be open until the end of November 2020.

Who is conducting the research?

This research is led by Dr Adam Noble, Senior Lecturer, Department of Health Services Research, University of Liverpool, UK

Who has reviewed this study?

This study has been reviewed and approved by Health and Life Sciences Research Ethics Committee (Psychology, Health and Society). (Ref: 7766).

Event Date: 
Monday 24 February 2020

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