We exist to improve the lives
of everyone affected by epilepsy

Can writing be helpful for people who have seizures?

Study title

Developing a writing intervention for patients with seizures

Institution

Sheffield University

About the study

We are currently conducting a research study at the Royal Hallamshire Hospital in Sheffield. We want to test whether a writing intervention can:

  • Help people with seizures feel more in control of their condition
  • Reduce their seizures
  • Improve their quality of life

The knowledge gained from this study will also contribute to a better understanding of what it is like to live with conditions that cause seizures.

When will this study be recruiting?

We will be recruiting participants from October 2015 to November 2016.

What will participants be asked to do?

You can take part in the study in two ways:

  • Option 1 is if you would like to handwrite
  • Option 2 is if you would like to type, using a computer

Option 1 (handwriting)

We will send you four writing booklets. Each booklet will contain a topic (question) you should write about, space for you to write and a short questionnaire. We will ask you to complete one booklet each day at home, making sure all four are completed within two weeks. We ask that you spend at least 20 minutes writing about the topic.

Once you have finished each booklet, we will ask you to complete a short questionnaire asking how you felt the writing went. Once all four booklets are completed, we will ask you to send them back to us, using a free-post envelope.

We will also provide a set of instructions containing important contact details and guidance to help you with your writing.

Option 2 (computer typing)

We will send you an information sheet with the details of a website address. When you access the webpage, you will see four webpage links that will take you to a writing session. Each session will contain a topic (question) you should write about, space for you to write and a short questionnaire. We will ask you to complete one session each day at home, making sure all four are completed within two weeks. We ask that you spend at least 20 minutes writing about the topic.

Once you have finished writing, we will ask you to complete and submit a short questionnaire, asking how you felt the writing went.

We will also provide a set of instructions containing important contact details and guidance to help you with your writing.

...............

We will also provide you with a writing session timetable. This is to record the time, date and location for completing the four individual writing sessions/booklets at home. 

We will ask you to complete follow-up questionnaires, one month and three months after completing the last writing session.

Who can take part?

For this study, we are looking to recruit people who:

  • Are over the age of 18
  • Have a medical diagnosis of either epilepsy or non-epileptic attack disorder (psychogenic non-epileptic seizures / dissociative seizures) or both
  • Are literate in English, able to write and complete a series of questionnaires without any assistance
  • Can provide informed consent
  • Live in the UK

People taking part in this study will have to write four times for 20 minutes about different topics.

If you agree to take part, we will ask for your consent for us to contact your doctor. We may need to confirm your medical diagnosis.

Who is conducting the research?

This study is being carried out as part of a PhD research project based at the University of Sheffield.

Who has reviewed this study?

The study has been internally reviewed at Sheffield University and has ethical approval from NRES Committee – North of Scotland.

Interested?

Please read the Participant Information Sheet on the following webpage to find out more information about the study: Developing a Writing Intervention for Patients with Seizures (a home-based study)

If you are interested in taking part, please register as a participant, by completing the two forms. We will then contact you with further instructions.

Take part

If you would like any more information, please do not hesitate to contact the research student:

Gregg Rawlings
Address: Academic Neurology Unit, University of Sheffield, Royal Hallamshire Hospital, Glossop Road, Sheffield, S10 2JF
Email: ghrawlings1@sheffield.ac.uk
Tel: 0114 271 1597

Developing a writing intervention for patients with seizures

Event Date: 
Tuesday 12 May 2015 - 13:49

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