What's it about?
The current COVID-19 pandemic is impacting on us all and it can be challenging for people with health conditions like epilepsy. This project aims to better understand the impact this is having on people with epilepsy and their wellbeing. It also aims to understand how people with epilepsy are able to manage their epilepsy risks.
As part of a new research project, SUDEP Action and a research team at the University of Oxford want to understand how people are
- Living with epilepsy during the current COVID-19 pandemic
- Managing different aspects of epilepsy during day to day life
- Taking steps to reduce risks and live safely with epilepsy
- Engaging with health professionals
Sharing information with SUDEP Action and their team of researchers will help them to better understand the challenges people with epilepsy are facing. This includes, both due to the COVID-19 pandemic and also more generally. The results will be helpful to ensure that action can be taken to help people stay safe and live well with epilepsy, during the pandemic and beyond.
How can I take part?
You can take part if you:
- Are over 18
- Have epilepsy or
- Care for a person with epilepsy or
- Are a healthcare professional who helps in the management of people with epilepsy
People from all over the world are invited to take part.
What will I have to do?
Complete an online survey. This will usually take between 10 to 20 minutes to complete.
You don’t need any background knowledge and you do not need to do any preparation before taking the survey.
Your answers will be anonymous. Researchers will not be able to identify you personally from your answers.
How do I get involved?
People with Epilepsy - Complete the survey here
Caregivers of someone with epilepsy - Complete the survey here
Healthcare professionals - Complete the survey here
Is there a deadline?
This survey will be open until 31 August 2021.
Who is conducting the research?
Dr Arjune Sen (NDCN, University of Oxford), Jane Hanna OBE & Sammy Ashby (SUDEP Action) are leading this project.
If you have questions or concerns about the project, please contact SUDEP Action:
Who has reviewed this study?
This study has received ethics approval from University of Oxford.