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Study title

DEMIE - A study to determine Medicine-related Issues in Epilepsy


Medway School of Pharmacy, Universities of Kent and Greenwich, UK

About this study

People with epilepsy often have to take anti-epileptic drugs (AEDs). These can cause difficulties for some people. To understand medication-related issues experienced by people who take AEDs, we need to first find out what these issues are.

A common way to find out about medication-related issues is to use a questionnaire.  At the moment, there is no such questionnaire specifically for people who take AEDs.

The aim of this research is to develop a new questionnaire on medication-related issues, based on the views and experience of people with epilepsy.

When will this study be recruiting?

July-October 2016

What will participants be asked to do?

We will ask you to to complete the Living with Medicines© questionnaire.

The questionnaire asks about your experience of taking regular medicines. It has been used by people with many different medical conditions. We want to see how good this instrument is at measuring and identifying issues with medicine in people with epilepsy.

The questionnaire can be completed online, or you can request a paper copy. You can return this in a freepost envelope supplied to you.

The questionnaire will take no longer than 15 minutes to complete. Your answers will be anonymous. 

At the end of the questionnaire, we will ask if you would be interested in taking part in a telephone interview. If you prefer, you can choose to only complete the questionnaire and opt out of the telephone interview.

Who can take part?

You can take part if you:

  • Have epilepsy and take anti-epileptic drugs or
  • Are the carer of a person with epilepsy who takes anti-epileptic drugs
  • Are over the age of 18
  • Are resident in the UK
  • Are able to read and write English

Who is conducting the research?

Michelle Cashin-Cox, a PhD Student: mc759@kent.ac.uk
Supervised by Dr Trudy Thomas: t.thomas@kent.ac.uk 

Who has reviewed this study?

Michelle Cashin-Cox, a PhD Student: mc759@kent.ac.uk
This project has been approved by the MSoP Research Ethics Committee.


Please visit the DEMIE - Living with Medicines Questionnaire page for more information and to participate in this research.

Take Part in the DEMIE study

Event Date: 
Tuesday 12 May 2015 - 13:49

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