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of everyone affected by epilepsy

Why do people with epilepsy feel they have problems with memory, attention or problem solving?

Study title

What causes people with epilepsy to feel they have problems with their memory, attention or problem solving?

Institution

University of Liverpool, UK

About the study

Cognitive abilities are the mental skills you need to carry out any task, from the most simple to the most complex. These mental skills include awareness, information handling, memory and reasoning.

People with epilepsy can sometimes experience changes to their cognitive abilities, for example changes to memory or concentration. You may or may not have noticed this yourself.

This study is looking at whether different styles of thinking affect what you think about your memory, concentration and other cognitive abilities.

By knowing more about this we can develop ways of helping, for example, by reducing anxiety and worry.

When will this study be recruiting?

Now, until December 2016.

What will participants be asked to do?

You will be asked to complete some tests, which will assess your memory, attention, processing speed and organising. These will take around 30 minutes.

You will also be asked to complete a questionnaire. This asks about your quality of life, thinking styles, mood and what you think about your cognitive abilities.

If you would like to take part, we can either:

  • Arrange for a researcher to visit your home (if you live around the Liverpool area) or
  • Make an appointment for you to come to us at the Walton Centre – we will pay your travelling expenses

Who can take part?

You can take part if you:

  • Are over the age of 18
  • Have been diagnosed with epilepsy
  • Live around the Liverpool area, or are able to travel to the Walton Centre in Liverpool, UK
  • Have not experienced any other neurological difficulties, such as a brain injury or multiple sclerosis

Who is conducting the research?

The research is being conducted within the University of Liverpool and the Walton Centre NHS Foundation Trust.

Who has reviewed this study?

All research in the NHS is looked at by an independent group, called a Research Ethics Committee, to protect your interests. This study has been reviewed and given ethical approval.

Interested?

If you are interested then please email Layla Mottahedin-Fardo (Lead Researcher, University of Liverpool) on laylam@liverpool.ac.uk or phone 0151 794 5534.

Event Date: 
Tuesday 12 May 2015 - 13:49

Comments: read the 6 comments or add yours

Comments

Would love to take part as I feel memory is a big issue with me. Can't come over though coz single parent & don't have the childcare. If tests can be arranged here then will gladly do

Submitted by Nicolas Lewis on

Would like to participate as had epilepsy for over 30 years and ongoing memory, concentration and problem solving. Can the questionnaire be done outside Liverpool as live in Derbyshire so not so easy to get to the Walton. Thanks

Submitted by Catherine Madge on

Hi Catherine

As you are interested in taking part, please email Layla Mottahedin-Fardo (Lead Researcher, University of Liverpool) on laylam@liverpool.ac.uk
or phone 0151 794 5534.

Thanks for your interest
Amanda

Submitted by Amanda Stoneman on

Thanks Nicolas. Please email Layla Mottahedin-Fardo (Lead Researcher, University of Liverpool) on laylam@liverpool.ac.uk
or phone her on 0151 794 5534, to see if this would be possible.

Thanks for your interest
Amanda

Submitted by Amanda Stoneman on

I'd love to help & have left my no with someone on the contact no you gave. So hope to here from you soon :-))

Submitted by Emma Davidson on

It's good to know that I'm not alone when it comes to having short and long term memory loss. Recently I have been attending a monthly support group in Liverpool and that has been a great help, as I don't feel as alone as I have in the past. I believe that there is far too much stigma for the people who have a mental illness as it is usually invisible and people live in such a marginalised way. Help groups, forums, meetings, research etc is surely the way to go if we are to further understand the roots of these illnesses. I hope that this research will be a step in the right direction to understanding the roots/causes of mental illness, and I'm sure the more people who volunteer for this will be a step in the right direction.

Submitted by colin trevorrow on

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