What's it about?
The British Paediatric Neurology Association (BPNA) and the James Lind Alliance (JLA) are working together. They want to find out what patients, their families, friends and professionals think should be researched in the future, around childhood neurological conditions. The aim is to improve the lives of children with these conditions.
The BPNA and JLA would like you to suggest some questions about treatments, therapies or procedures aimed at improving the health of children with neurological conditions, that could be researched.
Your ideas will be turned into research questions. These will go into another survey, which will ask people to put them into order of what they think is most important to least importance.
Am I eligible to take part?
Anyone who has an interest in childhood neurological conditions, which includes epilepsy, can take part.
Children under 16 are also encouraged to take part, but they will have to have permission from a parent/guardian. They may also need some help from parents or guardians to complete it.
What will I have to do?
You will be asked to complete an online survey, giving your thoughts about what should be researched. The survey will usually take around 5 minutes to complete.
How do I get involved?
Take the survey by following this link:.
Is there a deadline?
This survey will close on 14 January 2021
Who is conducting the research?
The British Paediatric Neurology Association (BPNA) and the James Lind Alliance (JLA)