What information do children and young people with epilepsy need about mental health?

What's it about?

Not a lot is known about the information children and young people with epilepsy and their parents or carers need about mental health. We want to find out what type of information is needed and when the right time is to give this. This will help healthcare staff to give appropriate information about emotional and behavioural difficulties to children and young people, parents and carers.

Who can take part?

You can take part if you are:

  • Living in the UK (England, Scotland, Wales and Northern Ireland)
  • Have epilepsy and are 11-18 years old
  • Care for a child or young person with epilepsy
  • A healthcare professional who works with children and young people with epilepsy and/or their families

What will I have to do?

You will be asked to join one online focus group using Zoom (you don’t have to have your camera on) or have an interview over the phone. You can also have someone with you during the focus group or telephone interview if you want. You can choose which would be best for you. Each focus group or interview will last about 2 hours.

If you are a child or young person, you will be asked questions like: Do you think it would be helpful to know more about mood (e.g. happiness, worry, sadness) and epilepsy?

Parents/carers will be asked questions like: Do you think it would be useful for you and your child to receive information on mental health and epilepsy?

How do I get involved?

If you would like to talk about what information children and young people need, please email sasha.barton.2019@live.rhul.ac.uk.

Is there a deadline?

30 December 2021

Who is doing the research?

Sasha Barton, Trainee Clinical Psychologist at Royal Holloway, University of London, Dr Sophie Bennett, University College London and Dr Anna Coughtrey, University College London

Who has checked this study?

This study has been approved by the Royal Holloway Research Ethics Committee (REC: 2517)

Subscribe to the e-action newsletter

Stay up to date with the latest news on coronavirus, epilepsy news and events, and how you can get involved.

Epilepsy Action will never swap, share or sell your details. For more information, read our privacy policy.
By clicking subscribe you agree to our privacy policy.