We exist to improve the lives
of everyone affected by epilepsy

Exploring what motivates and prevents young people with chronic conditions from being involved in healthcare decision-making

Study title

Exploring what motivates and prevents young people with chronic conditions from being involved in healthcare decision-making

Institution

Cardiff University

About the study

The researcher would like to find out about how involved young people feel in the decisions that are made about their healthcare.

When will this study be recruiting?

Now until May 2018

What will participants be asked to do?

You will be asked to either meet the researcher or have a telephone conversation with them. You will be asked to take part in activities and answer questions about your experiences during visits with your doctors. You will be in charge of how much or how little you get involved in the activities or answering the questions.

The meeting or telephone conversation will last about one hour and will take place at a time and place to suit you.

As a small token of our thanks, we will give you a £20 Amazon or Love2shop voucher.

Who can take part?

You can take part if you:

  • Are aged between 12 and 19
  • Have been diagnosed with epilepsy for at least six months

Who is conducting the research?

Amber Jordan, PhD researcher at Cardiff University.

Supervised by:

Dr Fiona Wood, senior lecturer
Dr Natalie Joseph-Williams, lecturer
Prof Adrian Edwards, Professor of General Practice

Who has reviewed this study?

NHS Research Ethics Committee.

Interested?

If you would like to find out more, please contact Amber
Tel: 029 2068 7643
Email: jordana3@cardiff.ac.uk

Event Date: 
Tuesday 12 May 2015 - 13:49

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