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of everyone affected by epilepsy

Self-perceptions and epilepsy

Study title

Self-perceptions and Seizures


The University of Sheffield 

About the study

Epilepsy and non-epileptic attack disorder (NEAD) are long-term conditions that can cause people to become anxious, worried and low in mood. 

Research has shown that people living with other long-term conditions cope differently with their illness, depending on the way they think about themselves. These different ways of thinking about themselves can have an effect on how well people manage to live with long-term conditions.

What is the purpose of the study?

The purpose of this study is to find out how self-compassion, gratitude and perfectionism are related to how well people with seizure disorders cope with their seizures.

We are also interested to find out how self-compassion, gratitude and perfectionism are associated with other aspects of people’s lives. For example, their mood and well-being.

When will this study be recruiting?

Now until November 2017 

What will participants be asked to do?

You will be asked to complete an online questionnaire. This would usually take no longer than 30 minutes.

Who can take part?

You can take part if you:

• Have had epileptic seizures or
• Have had non-epileptic attacks
• Are over the age of 16
• Live in the UK 

Who is conducting the research?

This study is being carried out as part of a Doctor of Clinical Psychology (DClinPsy) research project based at the University of Sheffield.

It is being carried out by Stephanie Clegg (DClinPsy Research Student), Dr Fuschia Sirois (Reader in Health Psychology) and Professor Markus Reuber (Professor of Clinical Neurology, Honorary Consultant Neurologist). 

Who has reviewed this study?

The Wales Research Ethics Committee 6 Proportionate Review Sub-Committee has reviewed the study and found it to be ethically sound. 


If you are interested in taking part in this study please click this button: Take Part

Event Date: 
Tuesday 12 May 2015 - 13:49

Comments: read the 1 comments or add yours


This looks a very good study, and I hope will result in more research in this field as many people develop different strategies. or don't, to deal with this limiting circumstances. Some good research would be also about what happens at the minute of someone being told they have seizures. I feel there needs to be more access to support, info packs in the consultant rooms, Gps surgeries that can be handed out as I felt shocked and abandoned and having a brain injury took me two months to work out that it was epilepsy.
Also needs more training and awareness for A and E staff as have had some very tough times, and they themselves are very overworked and need to know strategies that will make life easier for them.
Thank you

Submitted by Tessa Skoczylas on