Experiences of being a teenager with epilepsy
The Meath Epilepsy Charity, supported by Veriton pharma and Helen Lawn PR/communications specialists.
About the study
We plan to run a focus group, to try and find out what it is like to be a teenager living with epilepsy.
A focus group is a meeting to talk about certain topics. In this focus group, we will talk about things like:
• Stigma and epilepsy
• Coping with having epilepsy and what would help?
We will use the information we collect to develop support materials, to help people in this age group to live a more independent life.
When will this study be recruiting?
The deadline for registering is 20 December 2017.
The focus group will take place on 20 January 2018 at Meath Epilepsy Charity in Godalming, Surrey, 10am to 1pm.
What will participants be asked to do?
We will ask you to join in a discussion about your experiences of being a teenager with epilepsy.
Who can take part?
You can take part if you:
• Are aged between 11-18 years old
• Have been prescribed rescue medications
• Live in the UK, around Surrey, Hampshire, Sussex or South London
Parents and carers are also welcome to attend.
Lunch will be provided and reasonable travel expenses will be paid, if you live in and around Surrey, Hampshire, Sussex or South London
Who is conducting the research?
Sally-Ann Remnant consultant nurse and Helen Lawn communications specialist
Who has reviewed this study?
University of Cambridge, Faculty of Education Ethics committee
Please contact Sally Ann Remnant, epilepsy nurse consultant:
Tel: 01483 415095 or 07736 895135