I was diagnosed with epilepsy when I was 18. I was lucky – I got control of my seizures and I had good support around me from my family and a local Epilepsy Action group.
But that all changed when I had to move to the other side of the country for work.
Suddenly I didn’t have that support. I was alone and far from home. The nearest group to my new place was over 50 miles away.
The lowest point came when my mum died. My seizures began to happen more often and spiral out of control. It made me anxious and I got scared of leaving the house. The fear made the anxiety worse, the anxiety made the seizures worse. It’s a familiar story.
I’ve always been a positive person though. Growing up, a relative had really bad epilepsy. I always thought about her and knew that, however bad things get, there are people worse off.
Knowing that, and wanting to do something about it, I decided to set up my own group. I contacted Epilepsy Action again and advertised a group meeting in the town where I live.
I had no idea if anyone would be interested. But when the day of the first meeting finally arrived, 12 people turned up!
There for each other
Now the group is there for me when times get bad. They know what I’m going through without me having to explain. It makes such a difference.
Some people come to the group so they can talk about their epilepsy to others who understand. Some come for the company – because they’re scared to go out unless they know there’ll be others around who understand and know what to do.
Caz is just one of thousands of people who has found support, understanding and friendship through
Epilepsy Action’s growing network of local groups.
This is the kind of work you’ll be helping to support by entering the Epilepsy Action 2017 spring raffle.