We exist to improve the lives
of everyone affected by epilepsy


Thank you for completing the survey!

In the UK, 600,000 or one in every 103 people has epilepsy. Around 87 people are diagnosed with epilepsy in the UK every day. Despite this, it is often a misunderstood condition.

Epilepsy Action is very interested to see the results from the survey, to find out what people think and know about epilepsy. We’ll use this information in our aim to dispel the many myths that surround it.

How’s your epilepsy knowledge?

Here are the answers to some of the questions you just answered – how did you do?

When you see a person having a seizure, you should put something in their mouth to prevent them from swallowing their tongue

False ✔️

Do not put anything in a person’s mouth during a seizure. This could actually cause injury to the person you are trying to help.

Find out more about how to help someone who is having a seizure.

Anyone can develop epilepsy at any time

True ✔️

People are more likely to develop epilepsy in early life or later life, but anyone can develop it at any time. Possible causes include:

  • Stroke
  • A brain infection, such as meningitis
  • Severe head injury
  • Problems during birth which caused the baby to get less oxygen

In over half of all people with epilepsy, doctors don’t know what caused it.

Find out more about the possible causes of epilepsy.

You can catch epilepsy from someone who has it

False ✔️

You cannot catch epilepsy.


You can tell from looking at someone if they have epilepsy

False ✔️

Epilepsy can affect anyone at all - there’s no way you can tell by looking at someone.


All people with epilepsy should avoid flashing lights

False ✔️

This is a very common misunderstanding. In fact, only around three in every 100 people with epilepsy have seizures which are triggered by flashing or flickering lights.

If you’d like to learn more about epilepsy, please visit our advice and information pages.


Event Date: 
Thursday 24 May 2018 - 13:38

Comments: read the 2 comments or add yours


I found the survey I completed very interesting as I know 2 people who have epilepsy. The first one I knew was a near neighbour many years ago. I don't have any up to date info about her. The second one I see fairly often but she has other problems mostly mental health issues. She tells people she has had over 100 epileptic seizures some days but I suspect a lot of it is attention seeking.

Submitted by Liz Gray (not verified) on

Most interesting. I have never been aware of someone who has epilepsy and as a result I feel very ignorant about the subject

Submitted by Paul Power (not verified) on