We fight to improve the lives
of everyone affected by epilepsy

 

Comments and compliments

Epilepsy Action wants to provide the best service it can. To help us do this, we value your feedback and we are committed to using your comments to develop and improve the way we work.

If you have a suggestion or a compliment, please share it with us. It is good to know when things work well, and suggestions for improvement are always welcome.

Using your positive feedback to support our vital work

Sometimes, we may use comments in our publications and grant applications, to tell people about epilepsy and the many good things our work achieves. We always make sure quotes are anonymous, to protect the identity of our supporters. However, sometimes it is useful to give a name and, if we want to do this, we will always contact you to ask your permission.

Your contact details will never be given to anyone outside Epilepsy Action, unless we are required to under the Data Protection Act.

You may wish to use the our online form or write, email or phone with your comments.

Download service user's guide to feedback booklet

Comments: read the 3 comments or add yours

Comments

Hello
I am Vice Chair of the Burnley Football Club Disabled Supporters Association or DSA. We have a problem with pitch side streamed advertising that is causing supporters distress. A certain sponsor is using strobe effect sudden and unpredictable flashing images, and we are worried about the effects this may have on anyone suffering with epilepsy. Could you advise if we should take action to remove this. Your comments would be much appreciated. Also a direct contact would be useful.
Kevin Holden

Submitted by Kevin Holden on

Dear Kevin

Thank you for your question.

The advertising pitch side stream has been in use for a few years now. The boards themselves will not trigger a seizure for someone with photosensitive epilepsy. But the contents they show must meet advertising regulations.

https://www.epilepsy.org.uk/info/photosensitive-epilepsy

All advertising that has flashing or flickering lights, or patterns must be checked that they are not in the flicker range to trigger a seizure for someone with photosensitive epilepsy https://www.asa.org.uk/type/broadcast/code_section/04.html

It would be best to talk to the club to make sure all the advertising they show is tested.

If we can be of any more help, please feel free to contact our helpline team directly. You can either email helpline@epilepsy.org.uk or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Thursday 8.30am until 8.00pm, Friday 8.30am until 4.30pm and Saturday 10.00am until 4.00pm.

Regards

Diane

Epilepsy Action Helpline Team

Submitted by rich on

I have drug residtant complex partial and focal seizures.I contacted you about travel insurance you sent me email of company and said this may also be a positive question for the forum.As far as I'm aware you're the people who are supposed to give the advice not the person stuck with the condition.There are many forms of epilepsy.Other forums I've looked at with people messaging with how they feel are generally very depressing as they see no way out or trapped.Some have even suggested they hate it and can't stand it or don't want to carry on living with it.It's up to you to be offering constructive advice.There's nothing positive about epilepsy it just destroys your life.It's your responsibility to push government to invest more money into research and better treatment therefore giving people more independence,safety and higher self esteem.Discussing it with others on these forums just makes me miserable.To be fair you prob don't have epilepsy it's no fun,is not an interest or hobby so you take the responsibility in improving things not the person with epilepsy!16

Submitted by Elizabeth Wang on

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