We exist to improve the lives
of everyone affected by epilepsy


What is a syndrome?

A syndrome is a group of signs and symptoms that, added together, suggest a particular medical condition. In epilepsy, examples of these signs and symptoms would be things like the age at which seizures begin, the type of seizures, whether the child is male or female and whether they experience difficulties with learning.

If a child is diagnosed with a particular syndrome, it allows doctors to provide more information about what is most likely to happen to them in future years, not only from the point of view of the epilepsy but also in relation to other features such as learning skills.

In the UK there are support groups for parents of children with some types of syndrome. Details of the support groups can be obtained from the following

Contact a Family
209-211 City Road
London EC1V 1JN
Freephone helpline: +44 (0)808 808 3555
Email: info@cafamily.org.uk

Because this page is written by an epilepsy healthcare professional and not by Epilepsy Action, it falls outside the requirements of the Information Standard.

Epilepsy Action has a website for children with epilepsy

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This resource is freely available as part of Epilepsy Action’s commitment to improving life for all those affected by epilepsy.

On average it costs £414 to produce an advice and information page – if you have valued using this resource, please text FUTURE to 70500 to donate £3 towards the cost of our future work. Terms and conditions. Thank you

Our thanks

Epilepsy Action would like to thank

  • Dr Richard Appleton, and Dr Rachel Kneen, consultant paediatric neurologists at Alder Hey Children’s Hospital, Liverpool, UK and
  • Dr Stewart Macleod, consultant paediatric neurologist at Royal Hospital for Sick Children, Glasgow, UK.
    They have kindly prepared the information on this page. It is based on their own research, experience and expertise.

This information is exempt under the terms of The Information Standard.

  • Updated March 2013
    To be reviewed March 2015

Comments: read the 2 comments or add yours


Can Febrile Infection Related Epilepsy Syndrome (FIRES) be added to your list?

Submitted by Paula Spibey on

Hi Paula

Thanks for this suggestion. Our syndrome information is written by a neurologist, so we will certainly suggest this to him.


Epilepsy Action Advice and Information Team

Submitted by Cherry, Epileps... on