Share your story

Everyone’s epilepsy story is unique.

Sharing your story can help others feel less alone.

Help us to spread the word by signing up below to be a story champion.

Share your story
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What would you like to find out today?

Your story can make a difference

Whether you have epilepsy or have a loved one with the condition, sharing your story will raise vital awareness and can help others feel less alone.

Your personal experiences can also help us to shape our services, campaign for change, influence policymakers and inspire fundraisers.

There may be certain aspects or events that have impacted you such as your diagnosis, job or education. Or there could be moments or milestones in life that you’re really proud of and want to share with the wider world.

You may also have faced challenges that many people will relate to. And in sharing your story, you could also give others the strength to speak out about theirs. Whatever your story, we’d love to hear it.

"Being able to share your experiences with people who understand is life-changing. You can share as little or as much as you feel comfortable with."

Your stories are the lifeblood of our work, bringing to life the wide-ranging impact of epilepsy in powerful ways. Sharing yours can help us to:

Raise awareness in the media to educate, improve understanding and change attitudes towards epilepsy

Campaign for change to influence decision makers and create a fairer world for people with epilepsy

Inspire people to donate, fundraise or volunteer for us so we can continue to be there for people with epilepsy

Be there for others who are also affected by epilepsy to know they’re not alone and more able to seek out support

Submit your story


How will you share my story?

There are many ways we could share your story – these could include:

  • Media
  • Social media & videos
  • Campaigns
  • Fundraising appeals
  • Epilepsy Today magazine
  • Epilepsy Action website

Once you have sent in your story, we will be in touch as soon as we can to discuss our upcoming campaigns and how you might be able to help. We will never share your story with anyone without discussing it with you first. If you are interested in sharing your story with the media, we will always give you full support and briefing before any interviews to discuss any questions or concerns you may have.

Frequently asked questions

  • I’d love to share my story but I’m not sure about sharing my name – is this ok?

    Of course! We recognize the significance of sharing your story with others and it can be a very personal thing. Journalists often prefer to use real names in their stories, but there are many other ways we can share your story anonymously in other areas of our work – our stories team can talk to you about ways we can do this.


  • What kind of stories are you looking for?

    Epilepsy is about so much more than seizures and we’re always looking for stories that demonstrate the impact of the condition. It could be about the challenges you’ve faced at work and how you overcame them, or a situation where someone really made a difference for you.

  • Where could my stories be used?

    There are many ways we could share your story but we’ll always have a chat about ideas and opportunities first to make sure you’re happy with us doing so. Your story could feature in on our social media channels, Epilepsy Today magazine, campaigns, our website and fundraising appeals. We also get regular requests from journalists for people affected by epilepsy to share their stories in the media.

  • How long will it be before my story is shared?

    We get a lot of applications from people wanting to share their epilepsy story. It may be a while before the right opportunity comes up but our stories team will be in touch as soon as possible to discuss how we can use it.

  • Will I get to see my story before it’s published?

    Of course – if we can use your story we will discuss it fully with you first and share the write-up with you beforehand. If you’re sharing with your story with the media, we will share your approved write-up with the journalist but we ultimately don’t have the final say in whether it is published or how it will be shared.

Ready to share your story?

Tell us about yourself by completing the form below.