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of everyone affected by epilepsy


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Epilepsy Action is the largest membership organisation in the UK for people affected by epilepsy. Join with us today! Together we are stronger.

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Epilepsy Today cover Sept 2016Current members

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Comments: read the 5 comments or add yours


My daughter was diagnosed with Epilepsy aged 13. Fortunately she has always been controlled on her medication and it hasnt really interfered with anything she wanted to do in life i.e. University etc. Sometimes she feels sad I know and asks the question 'why me' but she has accepted her condition and she just gets on with enjoying her life as best as possible.

Submitted by Tracy Auton on

Hello,I have just been diagnosed with epilepsy aged 74.I was sent for an EEG test and suffered a seizure during the test,very disturbing for my wife and it took three big men to hold me down.So we're both trying to come to terms with this.It transpires that I've now had three seizures over 7 months.
My wife is now worried about leaving me alone.Any advice would be gratefully received.
Many thanks Mike Hatcher

Submitted by Mike Hatcher on

Hello Mike

Please accept our apologies in our delay in responding to your question.

Thanks for your message. It must have been very distressing for your wife to see you having a seizure like that. It’s likely to take a little time for both you and your wife to come to terms with your diagnosis. The good news is that with the right treatment there is a good chance that your seizures can be fully controlled. Both you and your wife may find our information for people who have been newly diagnosed with epilepsy helpful. This includes tips to help you take control of your epilepsy.

 It’s important to think about safety when you have epilepsy. Our safety advice gives suggestions on how to make your home safer if you have seizures. Putting some of these measures in place might make your wife feel more confident about leaving you on your own.

Some people with epilepsy choose to use a seizure alarm or monitor, which can alert someone if they have a seizure. We have more information about companies that sell these on our daily living aids page.

I hope this information is useful. If you or your wife would like to talk anything through or have any questions about your epilepsy, please feel free to contact us on the Epilepsy Action Helpline.


Epilepsy Action Advice and Information Team

Submitted by tpottinger on

hello i was diagnosed with epilepsy at 9 it was very hard for my mum having to take me to hospital every single time i had a seizure because she was scared and didn't know what to do because she had never seen them before. the doctors told her everyone can have one in there life but then it happened again and again i am now 14 and i am not stable on my medication and never have been i have had epilepsy for 6 years and am still wondering why me and why i can never speak or get help with my epilepsy i have tones of questions in my head they just doesn't come out. every now and again i break down because my epilepsy gets the better of me.
hope somebody reads this and reply's i need to talk to someone and get advise and help.
thank you Jessica

Submitted by jessica on

Hi Jessica

It sounds like you’ve been through a really tough time with your epilepsy. Epilepsy can be hard to come to terms with and it’s only natural that you’ve got lots of questions. Lots of people struggle to ask all the questions they want to ask when they see their doctor, so writing them down first can really help. You can even hand the list of questions to your doctor instead of asking them out loud if you find that easier. Have you got an epilepsy nurse? If so you can ask them any questions you have about your epilepsy as well.

We’re also here for you on the Epilepsy Action Helpline if you’d like to talk. You can call us free on 0808 800 5050. It’s completely confidential and no question is a silly question.

You might find it helps to talk to other young people with epilepsy. The Tea Room is an online chat forum especially for teenagers with epilepsy, where you can chat with others and support each other.


Epilepsy Action Helpline Team

Submitted by Grace-Epilepsy ... on

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