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Epilepsy Today latest news

Event Date: 
Monday 13 March 2017 - 14:57

Southern Health Trust pleads guilty in the case of Connor Sparrowhawk

21 Sep 2017

Southern Health NHS Foundation Trust has pleaded guilty to breaching health and safety law in the case of Connor Sparrowhawk who died at a facility ran by the trust in 2013.

Disability Benefits Consortium report finds process for claiming Personal Independence Payment (PIP) ‘not fit for purpose’

21 Sep 2017

The Disability Benefits Consortium (DBC) has concluded that for many people, how Personal Independence Payment (PIP) works is “not fit for purpose”. The DBC has based its conclusion on a survey of 1,730 people who have claimed PIP.

Frisium update as of 11th September 2017

11 Sep 2017

Sanofi now expect to have supplies of Frisium (clobozam) back in stock and at wholesalers by the week beginning 18th September 2017

Frisium update as of 5th September 2017

5 Sep 2017

The Department of Health has advised us that Sanofi expect to have supplies of Frisium (clobazam) back in stock and at wholesalers by the week beginning 11 September 2017.

Epilim Chrono 200mg tablets out of stock in UK

30 Aug 2017

Epilim Chrono 200mg tablets are temporarily out of stock in the UK. Sanofi – the company that makes Epilim Chrono – has told us they will be back in stock in the week commencing 11 September 2017.

Update on levetiracetam stock in the UK

25 Aug 2017

On 10 July we reported that some generic versions of levetiracetam were out of stock in the UK.

We now have an update on this situation:

Medical Practitioners Tribunal finds further failings made by Dr Valerie Murphy while caring for teenager with epilepsy

24 Aug 2017

A Medical Practitioners Trubunal has found a number of failings made by the consultant psychiatrist in charge of 18-year-old Connor Sparrowhawk’s care at Slade House disability unit.

Update on clobazam supply problems in the UK

10 Aug 2017

Update as of 21 August 2017

Accord has made more supplies of generic clobazam and distributed them to all wholesalers. So pharmacists should now be able to get it from any wholesaler.

Frisium is still out of stock. We will update this page when we know more.

10 August 2017