Epilepsy Today Latest News

Government urged to deliver on promises around access to cannabis-based medicines

The families of children with severe epilepsy and epilepsy charities are pleading with the UK government to act on promises made two years ago around access to cannabis-based medicines.

Frisium (clobazam) shortage in UK

Frisium (clobazam) 10mg tablets expected to be out of stock until early November.

Epilepsy and you… and me

During this year, I made hundreds of telephone calls to people with epilepsy. As a charity it is really important to us that people with epilepsy do not feel alone and isolated. So I’ve been talking to people about a course, developed by Epilepsy Action with people who have epilepsy and those working with them.

Epilim 500mg Gastro-Resistant tablets – recall of some batches

The Medicines and Healthcare products Regulatory Agency (MHRA) is recalling three batches of Epilim 500mg Gastro-Resistant tablets from pharmacies.

Epilepsy specialist nurses and ongoing epilepsy care lacking in Northern Ireland, study shows

A new 2020 study from Northern Ireland suggests that people with epilepsy are not getting access to vital epilepsy support.

Epilepsy Action Helping Hands Awards - Rachael and Danielle

Rachael Santos and Danielle Kennet were nominated for the award by their mum, Belinda Abbott who says they have shown her that “life is worth living”.

Carbagen (carbamazepine) discontinued in the UK

Mylan have discontinued their version of carbamazepine, called Carbagen.

Carbagen has been out of stock since January 2019, so most people will have already switched to a different manufacturer’s version of carbamazepine. If you are still taking Carbagen we recommend speaking to your GP or epilepsy specialist as soon as possible, as it is unlikely there will be much stock left.

Accord lamotrigine stock

Accord lamotrigine 50mg and 100mg tablets are out of stock in the UK. Accord expects them to be back in stock at the end of October 2020.