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Epilepsy Today latest news

Event Date: 
Monday 13 March 2017 - 14:57

Sunshine on the window: The butterfly effect

25 May 2017

Jasmine Forrest is a 25-year-old journalism student from Manchester. Throughout the years following her epilepsy diagnosis at age 17, she has experienced many highs and lows when dealing with (and accepting) her condition.

Trial finds cannabidiol may successfully reduce number of convulsive seizures in children and young adults with Dravet syndrome

25 May 2017

A new study has found that cannabidiol could be an effective treatment for people with Dravet syndrome.

Cannabidiol comes from the cannabis plant. It does not contain the part of cannabis that gives a ‘high’ – the psychoactive part.

Royal College of Paediatrics and Child Health starts next Epilepsy12 audit into children’s epilepsy services

16 May 2017

The Royal College of Paediatrics and Child Health (RCPCH) is starting a new review into how effective children’s epilepsy services are. This is known as the Epilepsy12 audit and this is the third review of this kind.

Why vertical stripes might trigger seizures in photosensitive epilepsy

16 May 2017

Scientists believe that they have found out why some still images can trigger seizures in people with photosensitive epilepsy.

Reminder that retigabine (Trobalt) will be discontinued in June 2017

16 May 2017

GlaxoSmithKline (GSK) is permanently discontinuing retigabine (Trobalt) from June 2017. It will no longer be available after June.

Emeside syrup discontinued

28 Apr 2017

Essential Pharma has discontinued its version of ethosuximide syrup, Emeside.

If you take Emeside syrup, you will need to switch to a generic version of ethosuximide syrup. This is because the other branded version of the syrup, called Zarontin, has also been discontinued.

If you have any concerns about this, speak to your doctor, epilepsy nurse of pharmacist. 

Man who sent flashing ‘GIF’ image on Twitter to US political journalist with photosensitive epilepsy has been charged

27 Apr 2017

Last month, a man accused of sending a tweet with a flashing image to a US political journalist with photosensitive epilepsy was arrested. John Rayne Rivello, 29, was charged with criminal cyber (online) stalking.

Cannabis oil prescribed on NHS in ‘first case of its kind’ in the UK

27 Apr 2017

The medicine cannabis oil has been prescribed to a young boy with epilepsy on the NHS. Reports have called this the “first case of its kind” in the UK.