Epilepsy Today latest news
Jasmine Forrest is a 25-year-old journalism student from Manchester. Throughout the years following her epilepsy diagnosis at age 17, she has experienced many highs and lows when dealing with (and accepting) her condition.
Trial finds cannabidiol may successfully reduce number of convulsive seizures in children and young adults with Dravet syndrome
Cannabidiol comes from the cannabis plant. It does not contain the part of cannabis that gives a ‘high’ – the psychoactive part.
Royal College of Paediatrics and Child Health starts next Epilepsy12 audit into children’s epilepsy services
The Royal College of Paediatrics and Child Health (RCPCH) is starting a new review into how effective children’s epilepsy services are. This is known as the Epilepsy12 audit and this is the third review of this kind.
GlaxoSmithKline (GSK) is permanently discontinuing retigabine (Trobalt) from June 2017. It will no longer be available after June.
Essential Pharma has discontinued its version of ethosuximide syrup, Emeside.
If you take Emeside syrup, you will need to switch to a generic version of ethosuximide syrup. This is because the other branded version of the syrup, called Zarontin, has also been discontinued.
If you have any concerns about this, speak to your doctor, epilepsy nurse of pharmacist.
Man who sent flashing ‘GIF’ image on Twitter to US political journalist with photosensitive epilepsy has been charged
Last month, a man accused of sending a tweet with a flashing image to a US political journalist with photosensitive epilepsy was arrested. John Rayne Rivello, 29, was charged with criminal cyber (online) stalking.