Epilepsy Today Latest News

Clinicians should have the option to prescribe cannabis-based medicines, the ACMD tells the UK government as part of review

People with certain medical conditions should be able to get access to cannabis-based medicines, according to the Advisory Council on the Misuse of Drugs (ACMD).

Comedian Maisie Adam shares her experiences growing up with epilepsy in her new show Vague

Imagine for a second you had to tell a stranger about your epilepsy. Actually, not one person. Maybe hundreds of strangers. And not one by one. All at once.

Frisium out of stock in the UK

Frisium (clobazam) tablets are out of stock in the UK. Sanofi expects to have more stock available to send to wholesalers in the week beginning 6 August 2018.

If you are due to run out of Frisium, your pharmacist can ring Sanofi to find out which wholesalers may have stock.

The US FDA approves cannabidiol medicine Epidiolex for use in Lennox-Gastaut syndrome and Dravet syndrome

On Monday 25 June, the US Food and Drug Administration (FDA) approved the new cannabis-based medicine Epidiolex for use in Lennox-Gastuat syndrome (LGS) and&

Teva lamotrigine tablets – some doses out of stock in the UK

Update 22 June 2018

Lamotrigine Teva 100mg tablets (non-dispersible) have just come back in stock.

The 50mg non-dispersible tablets are still out of stock. Teva does not currently know when these will be back in stock.

Original story 8 June 2018 

Teva is out of stock of the following medicines:

UK government to review use of medicinal cannabis

A review into the use of medicinal cannabis was announced by the Home Office yesterday at the House of Commons.

Home Secretary, Sajid Javid, made the announcement saying that the “position we find ourselves in is not satisfactory”.

Home Office returns confiscated cannabis oil to 12-year-old Northern Ireland boy with epilepsy after he has first seizure in over 300 days

The UK Home Office has returned 12-year-old Billy Caldwell’s cannabis oil epilepsy medicine after he was taken to hospital on Friday 15 June. This was after Billy’s medicine was confiscated at Heathrow Airport on Monday 11 June.

Billy, from Castlederg in Northern Ireland, has a severe form of epilepsy and has previously had up to 100 seizures a day.

Diagnosis, treatment and seeking independence with a Dravet syndrome diagnosis

Maxine has Dravet syndrome, a rare and severe form of epilepsy. Her mum Patricia tells Epilepsy Today about life with the condition, from diagnosis and treatments, to finding independence