We exist to improve the lives
of everyone affected by epilepsy



Fundraising Events Officer (maternity cover for 12 months)

Based at: New Anstey House, Gate Way Drive, Yeadon, Leeds, LS19 7XY
Salary: £25, 690

34.5 hours - This post is for a fixed term of 12 months to cover maternity leave from mid-January 2019

Epilepsy Action is looking for a highly motivated and organised individual to be part of its successful events fundraising team. This role will allow you to develop your fundraising and event organising skills in a friendly team oriented environment.

Delivering a wide range of fundraising opportunities and responsible for generating income, this role will include: 

  • Developing and organising a variety of national fundraising events, and seeking involvement in externally organised national or regional sports and challenge events.
  • Generating income from events with individuals, groups and communities
  • Maximising involvement and participation in events through a variety of marketing and promotional streams.
  • Working with the Fundraising Events Manager to devise new opportunities and events.
  • Reporting on income and expenditure against targets and other key performance indicators on a regular basis.
  • Ensuring close collaboration with relevant staff and other stakeholders as appropriate..

This role is suitable for fundraisers with previous experience of organizing fundraising events. You will need excellent interpersonal skills and the ability to communicate effectively with a range of audiences, both verbally and in writing.

In return we will offer you great flexible working conditions and a commitment to develop your knowledge, skills and abilities.

Read job description and person specification

Download your application pack below, email recruitment@epilepsy.org.uk or contact our recruitment line on 0113 210 8830. CVs will not be accepted.

Closing date: 26 November 2018
Interviews: 13/14 December 2018 (you will be required to prepare a presentation if you are shortlisted for interview)
Job Ref: FEO1118

Epilepsy Specialist

2 days a week for 12 months or freelance contract

Epilepsy Action would like to engage an epilepsy specialist professional to develop a funded project addressing epilepsy-related deaths. We are seeking an experienced epilepsy professional with skills in developing resources for healthcare professionals and patients.

Epilepsy Action is leading a project to ensure that people with epilepsy are fully informed about their condition and understand the risk of epilepsy-related death. Current guidance states that people with epilepsy (PWE) and their families should be told about the risk of epilepsy-related death. The project will build on recently synthesised research evidence and be delivered in partnership with appropriate organisations and healthcare professionals (HCPs).

A full project brief is available for reference:

Full project brief

If you are interested in this opportunity, please send your expression of interest to recruitment@epilepsy.org.uk by 26 November 2018.

Please include examples of your experience of:

  • Developing resources
  • Undertaking discussions of risks with people with epilepsy
  • Facilitating groups of professionals and patients
  • Delivering projects on time and to budget 

Looking to volunteer?

Most of our paid jobs are at our head office in Leeds.  But we do have a wide range of volunteer roles across the UK if you're looking to give some time to support people with epilepsy.

Application forms

Please send electronic applications to recruitment@epilepsy.org.uk and printed applications to Recruitment, Epilepsy Action, New Anstey House, Gate Way Drive, Yeadon, Leeds LS19 7XY

Epilepsy Action is an equal opportunities employer and is committed to the training and development of its staff.

Epilepsy Action is a Disability Confident employer. We encourage applications from disabled people. We will interview all disabled applicants who meet the essential criteria in the person specification.

Event Date: 
Wednesday 15 February 2017 (All day)

Comments: read the 2 comments or add yours


I am an epilepsy sufferer and am struggling to get a job let alone pass a medical. Soon as I say I am epileptic I end up losing my job but they will never give me a reason.

Any advice in helping epileptics get jobs? I live in London and still out of work.

Submitted by Louise Elizabet... on

Hello Louise

I can hear that finding work has been challenging for you.

You may find it helpful to explore our work booklet. This tells you more about your rights in the workplace and includes information about looking for work.

It also includes information about telling people in the workplace about your epilepsy. In general, whether you need to tell an employer about your epilepsy depends on things such as the type of role you work in, how well controlled your seizures are and whether you would need any reasonable adjustments to be made.

Some people tell us it has been helpful to them to work with an employment service. These offer support to people with a disability to find employment. Maybe you could take a look to see if there is one in your area who would be able to support you to find the right role for you.

I wish you all the best in your search.


Epilepsy Action Helpline Team

Submitted by Karen-Epilepsy ... on

e-action newsletter

Subscribe to our e-action newsletter and stay informed

Subscribe to e-action newsletter feed