We fight to improve the lives
of everyone affected by epilepsy


In memory

There are many people who have made a contribution to epilepsy. Some of them are remembered here:

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I support any organisation that offers help, support and advice to those with Epilepsy. My brother passed away on 24th June 2017, on my mother's 83rd birthday! We have just had an inquest with regard to the circumstances of his death. It was so sad.... Many people with epilepsy become estranged from some family members and become socially isolated. This is something of what happened to Edmund, my brother, although my daughter and I kept in constant communication and in touch every day by phone as we live a long way from where he lived.. I would like to ask if there is a tribute or in memorium page that you offer for family members to remember loved ones in a positive way. Also I intend to lobby the government to seek a change in the law with regard to "failure to rescue". As in my brother's case he was found by a so called "friend" who did not contact paramedics for 12 hours and, by then, it was too late! We know why, due to other aspects of the police investigation at the time of his death. We had an Inquest which made things even worse for myself and my daughter. We are trying to come to terms with the fact that Edmund was left alone by his brothers who lived closer to him, due to some arguments, his behaviour could be challenging, due to his brain injury following a car accident where he sustained scarring to the brain and, as a result, was diagnosed with Temporal Lobe Epilepsy and other associated brain traumas, such as Post Traumatic Stress, Anxiety, Cognitive function impairment (especially memory and speech etc). He was a good person and very kind to others. He did not deserve to end his life like that with the one person in attendance who did nothing to help him. Hence we are going to lobby for a change in the law.... Thanks for listening.

Submitted by Katherine Brooks on

Thank you for your message. I’m really sorry for your loss.

Your message has been passed to my colleague Lisa who runs the Sunflower Fund. A Sunflower tribute is an online memory page that gives you a place to remember Edmund. You can contact Lisa on lgoodall@epilepsy.org.uk for more information.

You may also want to contact SUDEP Action. This is a charity that specifically works to support people who have lost someone due to an epilepsy-related death. They campaign to raise awareness of the number of these deaths that happen and work towards a world in which these deaths can be prevented.

I do hope this is of some use to you.



Epilepsy Action Helpline Team

Submitted by rich on

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