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Claire

This is a photo of my 3rd EEG. I was diagnosed at 15, still at boarding school. My roommate noticed my seizures first, and that's when it started. Inbetween revision for my first year of GCSE's I had hospital appointments, scans, tests, all combined with the adolescent fear that something was very wrong with me.

I blamed stress from school (which won’t have helped). However I was diagnosed with epilepsy, and given Tegretol.
It stopped the seizures but I felt awful. I couldn’t concentrate, became angry, gained weight. Surely this wasn’t right? I went back to my doctor who agreed the side effects were too troublesome and put me onto Lamotrigine.

Until university it worked perfectly. No seizures, I lost weight, became much more confident, passed my A-levels, won an art award at school, and went off to study Makeup at Bournemouth! I was thrilled! Things were going so well!

As the seizures returned lamotrigine was increased, then I took Keppra instead. Unfortunately it wasn’t enough. I deferred from university, now I’m on zonisamide and keppra, still with my seizures not 100% under control, waiting for a hospital appointment to find out if frontal lobe surgery is an option.

Claire
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