How we create our health information

We know that an epilepsy diagnosis can be overwhelming. Having clear, up-to-date health information can help you make informed decisions about living with the condition

Epilepsy Action is a member of the PIF TICK scheme. This is the UK-wide quality mark for trustworthy health information.

Having PIF TICK means that we have been accredited as providing reliable, accurate and high-quality health information about epilepsy that you can trust.

The PIF TICK quality mark

The PIF TICK is the only independently-assessed certification for both print and digital health information. To gain the PIF TICK and become a ‘Trusted Information Creator’ you must show your information production process meets 10 key criteria:

  • Information is created using a consistent and documented process
  • Staff receive ongoing training and support
  • Resources meet a genuine need
  • Information is based on reliable, up-to-date evidence, which is communicated clearly
  • Users are involved in the development of information
  • Information is written to meet health literacy, digital inclusion, language and accessibility needs of the audience
  • Information complies with GDPR, promotion of medicines and other regulations
  • There is a clear process for users to provide feedback
  • Information is promoted to maximise reach
  • Impact of information is measured

PIF TICK is awarded after a thorough application and assessment process by the Patient Information Forum.

Reliable, up-to-date and accessible health information

All the health information we create goes through a rigorous editorial process, which includes these steps:

  • ask users to read it and give feedback
  • get expert advice from healthcare professionals
  • use the latest medical evidence
  • review each topic at least every 3 years
  • write in plain English and avoid jargon to make it accessible to the widest range of people

We display the PIF TICK logo on all the information that has gone through our editorial process. You can provide feedback on every page of health information on our website.

PIF TICK logo – a green circular badge with a white checkmark in the center, symbolizing trustworthy health information, accompanied by the words 'PIF TICK'."

Our sources

Our information is in line with accepted national or international clinical guidelines where possible. We also use high-quality research, such as systematic reviews, and published clinical trials data. We also use medical textbooks and government publications. You’ll find all the sources used to put our health information together on our webpages.

Our language

We respect people with epilepsy and don’t define them by their condition. We use inclusive language that clearly demonstrates that Epilepsy Action is a community of people. We are united in supporting people affected by epilepsy and creating a better, fairer world for anyone living with the condition.

We never assume that people are able bodied, live in a ‘traditional’ family, can read or understand English, or come from a particular racial, cultural or religious group. We only mention such factors if they are relevant to the content.

We use gender-inclusive language and try to talk to our readers as ‘you’ so that everyone feels included. We may use additive language where necessary, such as ‘women and people who are pregnant’.

Help us review our information

Our Health information volunteers help us produce information that will best serve the needs of everyone affected by epilepsy.

We are always looking for new volunteers to read our health information and tell us if it is easy to understand, answers their questions and helps them to make informed decisions about their lives.

Find out more about becoming a health information volunteer for Epilepsy Action.

For more information

If you have any questions or feedback about the health information provided by Epilepsy Action, please contact the Health Information team at healthinfo@epilepsy.org.uk