Epilepsy Action’s press office can provide you with:
- Expert comment on epilepsy issues
- Epilepsy Action spokespeople
- Radio interviews on our in-house ISDN line
- Case studies
Contact the press office
The press office is available to respond to media enquiries on 0113 210 8870 or via email at email@example.com.
Follow us on Twitter @epilepsycomms.
Out of office hours
Please call 07823 558 569 to speak to a member of our on-call PR team.
All other enquiries
For background information and resources, try accessing our website, e-learning materials, YouTube, social media, and the epilepsy facts below. If you are still unable to find what you’re looking for, contact us at firstname.lastname@example.org.
- There are 600,000 people with epilepsy living in the UK. That’s a similar figure to people living with autism. And four times higher than those living with Parkinsons.
- Epilepsy is a serious neurological condition that can affect anyone, at any age and from any walk of life.
Epilepsy affects around one in every 100 people in the UK. Every day, 87 people are diagnosed.
- Deaths in people with epilepsy have increased by 70% and people with the condition now die on average eight years earlier than the rest of the population, according to new figures from Public Health England (PHE), published in February 2018.
- PHE also found that people with epilepsy are three times more likely to die from their condition if they live in a deprived area.
- Photosensitive epilepsy affects 3% of people with epilepsy. In this type of epilepsy, seizures are triggered by flashing or flickering lights, or some patterns.
- Only 52% of people with epilepsy in the UK are seizure free. It is estimated that with the right treatment, the majority of people with epilepsy (70%) could be seizure free.
- Case studies
Epilepsy Action ambassadors
Our celebrity ambassadors work with us to raise public awareness and share their own stories of how epilepsy has affected their lives.
Feedback from people with epilepsy suggests the following as more positive or preferred ways of referring to the condition.
Please feel free to ask us for further guidance.
- ‘Illness’: epilepsy is a condition, not an illness.
- ‘Fit’: the term ‘seizure’ or ‘epileptic seizure’ is preferred by many people. However, some people with epilepsy still choose to use the word ‘fit’.
- An ‘epileptic’: it is important to look at the person before the medical condition, therefore it is more helpful to say ‘a person with epilepsy’.
- A ‘victim, sufferer’: this implies someone is helpless.
- Grand Mal or Petit Mal are terms previously used to describe seizure types, and have now been replaced in medical terminology.
Become a story champion
We’re always looking for people willing to share their story about living with epilepsy.
Sharing your experience can help to raise awareness, break down stigma and education people about epilepsy