We exist to improve the lives
of everyone affected by epilepsy

 

Press Office

Contact the Press Office – The press office is available to respond to media enquiries on 0113 210 8870 or via email at press@epilepsy.org.uk. Follow us on Twitter @epilepsycomms.

Out of office hours – Please call 07823 558 569 to speak to a member of our on-call PR team.

All other enquiries – Please call the general number on 0113 210 8800 or the Epilepsy Action helpline on freephone 0808 800 5050 or email helpline@epilepsy.org.uk.

Epilepsy Action’s press office can provide:

  • Expert comment on epilepsy issues
  • Epilepsy Action spokespeople
  • Radio interviews on our in-house ISDN line
  • Case studies

Student enquiries
For background information and resources, try accessing our website, e-learning materials, YouTube, social media, and the epilepsy facts below. If you are still unable to find what you’re looking for, contact us at press@epilepsy.org.uk.

Epilepsy facts

  • There are 600,000 people with epilepsy living in the UK. That’s a similar figure to people living with autism. And four times higher than those living with Parkinsons.
  • Epilepsy is a serious neurological condition that can affect anyone, at any age and from any walk of life.
    Epilepsy affects around one in every 100 people in the UK. Every day, 87 people are diagnosed.
  • Deaths in people with epilepsy have increased by 70% and people with the condition now die on average eight years earlier than the rest of the population, according to new figures from Public Health England (PHE), published in February 2018.
  • PHE also found that people with epilepsy are three times more likely to die from their condition if they live in a deprived area.
  • Photosensitive epilepsy affects 3% of people with epilepsy. In this type of epilepsy, seizures are triggered by flashing or flickering lights, or some patterns.
  • Only 52% of people with epilepsy in the UK are seizure free. It is estimated that with the right treatment, the majority of people with epilepsy (70%) could be seizure free.

Get more epilepsy facts

Suggested terminology

Feedback from people with epilepsy suggests the following as more positive or preferred ways of referring to the condition. Please feel free to ask us for further guidance.

  • ‘Illness’: epilepsy is a condition, not an illness.
  • ‘Fit’: the term ‘seizure' or ‘epileptic seizure' is preferred by many people. However, some people with epilepsy still choose to use the word ‘fit’.
  • An ‘epileptic’: it is important to look at the person before the medical condition, therefore it is more helpful to say ‘a person with epilepsy'.
  • A ‘victim, sufferer’: this implies someone is helpless.
  • Grand Mal or Petit Mal are terms previously used to describe seizure types, and have now been replaced in medical terminology.

News

Keep up-to-date with the key issues in the world of epilepsy with our online magazine Epilepsy Today.

Keep up-to-date with the latest Epilepsy Action news on our blog.

Marketing queries

For marketing/advertising enquiries, please contact Mike Fulton on 0113 210 8877 or email mfulton@epilepsy.org.uk.

Become a media volunteer

We get requests each week from the media, often wanting to interview someone with epilepsy who have a story to tell. Talking about your own experience is a good way to raise awareness and educate people about epilepsy. Your story might help other people with epilepsy and their families to realise they are not alone and how to access help and support.

If you're happy to help by sharing your story then please let us know using the form provided. Please remember to give us a daytime contact number or email address if you have one.

Please be aware that, although our press office can provide journalists with information about epilepsy, ultimately, we have no say in whether an article is printed and little control over the final printed version of an article.

We're looking for people willing to talk about any aspect of their life with epilepsy.

Register as a media volunteer

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